HI Everyone! I just wanted to say hello and share a little about my story. I am a 24 year old female with primary lymphedema. I was diagnosed when I was 11 after a battery of various tests. My lymphedema is in my left lower extremity, starting in my toes and ending right below my knee. When I was first diagnosed, the doctors said there was nothing that could be done to treat the condition. Last year, I started advocating for myself and found a wonderful lymphedma occupational therapist who has taught me so much about the condition. I have lost cups of fluid out of my leg and cannot believe how much smaller my leg is. I can even wear boots now! I have yet to meet another individual with lymphedmea and was hoping to make some friends to share stories/experiences with on this site. Does anyone have a similar experience? Or want to share any stories or tips?
