Posted Vicki Joice
byHi, everyone, I've been dealing with right arm down into my fingers lymphedema for almost 3 years now. Read More...
Posted Tom Freeman
byA post to my profile reminded me that I should post a brief update from the last year. My original quest Read More...
Posted Kurt Kurt
byHello all. I am looking or some advice with a situation I am having. For the past couple years I have been dat Read More...
Posted William Gautier
byPrescription drugs, according to the American Medical Association, are the 4th leading cause of American death Read More...
Posted Pat Truman
byHello, I have just joined. I am having a hard time finding any responses to people's questions. I am looking f Read More...
Posted Tom Freeman
byHello all! A quick background on why I'm here, what I hope to gain, and what I hope to give. I'm a car Read More...
Posted margaret webb
byHow much liquid magnesium do we put in eight ounces of water to stop leg cramps? Do I need anything else? I ha Read More...
Posted margaret webb
byGood morning everyone!! I hope everyone has a pain free and no swelling day. A girl can dream!!
Posted margaret webb
byI am new to this 'Blogs' stuff. I have a question. I have to wear shoes that are for broken toes.& Read More...
Posted Brenna M.
byIt’s been three years since I underwent LVA and I have a promising update to share with those interested Read More...
Posted Harriett Richard
byThis is a recent blog posting of mine. It contains 2 others on lymphedema. Hopefully, it will serve as my intr Read More...
Posted Janet Eccles
byThanks for the add on. Little bit about myself. I have a very rare condition called Cogans Syndrome, and with Read More...
Posted Galasso Carol
byHello Everyone, I am writing this for my wife Carol who has recently been diagnosed with Lymphedema. The cond Read More...
Posted Cade Flin..
byI have had lymphedema for all 25 years(so far) that I have been on this earth. There is an astonishing amount Read More...
Posted Tony M
byWell I hear a lot talk about self esteem when it comes to women with lymphedema dating. I find it difficult to Read More...
Posted Marge Naab
byI am new to lymphedema I don't understand how or why I got this. It is my left arm that is swollen and I have Read More...
Posted Donna Payne
byI had total knee replacement in May, and developed Lymphedema approx 2 months later. Is there any advice as to Read More...
Posted Mary Ann Sandoval Obadiah
byI hope it is ok to ask this question here. I am a lymphedema therapist, although I have been home taking Read More...
Posted Sandra McCrea
bywondering how many others have this - My legs are greately affected and arms aren't much better. Has any Read More...
Posted Lori Fuller
byMy sister and I both are candidates for LVA surgery with Dr. Chen in IowaCity, IA. My sister Wendy Boylan is a Read More...
Posted sandra renaud
byHi I have had truncle le for 8 year The only treatment I have done was compresson and it gave me more pa Read More...
Posted Brenna M.
byI recently underwent surgical treatment for primary lymphedema in my right leg. The procedure, called LVA (Lym Read More...
Posted Deb P
byI have recenctly been told I have lymphedema and been told I can't get in to see the physical therapist until Read More...
Posted veda beck
byhello I was wondering if anyone has Lymphedema in their abdomen? I am obese but i only have it on the&nb Read More...
Posted Nathalie B
byHello! I have not posted in a long time, but I think is time I share that kinesio taping has been working ver Read More...
Posted Jim Miller
byHas anyone found a relationship between primary lymphedema and kidney functions? Or dysfunctions, I should say Read More...
Posted Anne Rock
byI have a solution tor those who have one-leg Lymphedema to keep the normal leg at about the sam Read More...
Posted Julie Deane
byI'm a new therapist. When I unwrap my patients bandages there are areas of raised fluid filled skin at the tib Read More...
Posted Sasha Vinokur
byHas anyone used Coban 2 with lymphedema patients instead of bandaging? Or have any information a Read More...
Posted Kathy Warwick
byI have Lymphedema in one arm brought on recently by a mastectomy 15 years ago. I am struggling to find t Read More...
Posted Phoebe Atkins
byIn previous years, before the current economic downtown, project managers found it easy to get contracts. The Read More...
Posted Constance Miller
byLooking for research articles on treatment of lymphedema, post breast surgery, with cold laser. Anyone h Read More...
Posted Charlotte Marx
byI am a breast cancer survivor while in radiation treatment I got arm Lymphedema,I am now 4years in remission r Read More...
Posted rafael zuniga
byim rafael i have lyphedema brought on by being extremely obese . i have always been overweight &nb Read More...
Posted Veal Jan
byI have LE in my right arm, half of my right back and all down my trunk. I can handle the arm and back, but the Read More...
Posted Jocelyn Bateman
byToday my foot swelled up to a pretty large size today. I work at a summer camp and that means children, lots o Read More...
Posted Victor do Valle
byHello, I am Brazilian, though here have good treatments, there is definitely something that really solve the p Read More...
Posted Helen Bonynge
byThis is a link to a symposium on the latest advances in Surgery for Lymphedema.. It is from the Anderson Cance Read More...
Posted Helen Bonynge
byhttp://lymphnodetransplant.wordpress.com/about-me/ Blog about the surgical interventions for Lymphedema... Pat Read More...
Posted Jenny Sterner
byLymphedema Treatment Act Update: March 26, 2013 We are still in the process of building Read More...
Posted Jenny Sterner
byLymphedema Treatment Act Update: Our sponsor for the 113th Congress, Congressman Dave Reichert ( Read More...
Posted Lympha Yogi
byHI Everyone! I just wanted to say hello and share a little about my story. I am a 24 year old fema Read More...
Posted Anne Rock
byHas anyone experienced using a compression pump on an airlines? I have Lymphedema in my left leg, so of course Read More...
Posted Rosa Covarrubia
byI just want to let the community out there know that I had a mastectomy on November 20, 2008, followed by chem Read More...
Posted Jenny Sterner
byLymphedema Treatment Act Update: Going into the August recess our cosponsor count was 89. Although me Read More...
Posted Mary Angel
byI didn't know I had so much to say. Does anyone know of a good night sleeve that is reasonable priced. The one Read More...
Posted Mary Angel
byJust throwing out one of my observations. I am looking online for a new sleeve. Don't you just love the Read More...
Posted Mary Angel
byJust found this site. "Bar fight gone bad on a Saturday night" is my usual response when someone asks Read More...
Posted melinda kirkley
byMy name is Melinda and I am 34 yrs old. I was diagnosed with cellulitis and lymphedema on October 9, 2011. I h Read More...
Posted Donna Jasset
byHi, I am new to this blog and hoping I can get some direction. I am an oncology nurse and took the Read More...
Posted Jenny Sterner
byHappy spring!At your earliest convenience, if possible, please take just five minutes to submit letters to you Read More...
Posted Jenny Sterner
byLymphedema Treatment Act Update / March Newsletter: As of this writing, HR 2499 has 62 cosponsors!&nb Read More...
Posted corcoran corinne
byHas anyone heard of Dr. Granzow and his surgeries for lymphedema? Here is a link to his website. I would love Read More...
Posted Jenny Sterner
byA heartfelt thanks to all of you who have helped to make the accomplishments of 2011 a reality! Highligh Read More...
Posted Jenny Sterner
byWe need your help with a very quick and easy but important task. Please go to our website - www. Read More...
Posted cosmina cocan
byA philosophy professor stood before the class with the depratment with a few things. When the class bega Read More...
Posted Jenny Sterner
byThis year’s trip to DC will be Nov. 2–5, 2011. Please visit our website for complete Read More...
Posted Mary Shoup
byCan I get my Facebook Photo to show here for the lymphedema community? If so, how? Thx everso.
Posted Jenny Sterner
byRE: Lymphedema Treatment Act Update Thank you so much to those of you who have already contacted Read More...
Posted Jenny Sterner
byLymphedema Treatment Act Update: The Lymphedema Diagnosis and Treatment Cost Saving Act of 2011, HR 2 Read More...
Posted Jim Miller
byOne thing I've found helpful in my 43 years of managing my own primary lymphedema (mostly in my left and now e Read More...
Posted Michele E.
byTwo blogs in a week! I can't stop...... In my most recent blog, I shared about the feelings of Read More...
Posted Michele E.
byDating is tough when you’ve had so many bad experiences and poor self image because no one understood yo Read More...
Posted Jenny Sterner
byOn May 25th a stakeholder’s meeting took place at the DC office of Congressman Larry Kissell, our bill s Read More...
Posted Michele E.
byThe dating environment has changed dramatically from mom and dad “recommending” your mate to picki Read More...
Posted cosmina cocan
byI've always been in search of "quelque Chose" ... and still are! That is why I documented ... I'm espe Read More...
Posted Kari Stuart
byHas anyone had the lymph node transfer procedure done? How successful is it?
Posted Kari Stuart
byAnyone had laser hair removal? I know I am not supposed to shave but I just do not feel pretty with hair Read More...
Posted S K
byHello, I am new to the area of Whidbey Island, Washington and am seeking a certified therapist.. I have had tr Read More...
Posted Jenny Sterner
byWe are pleased to announce two wonderful additions to our website: we now have a Resources for Patients pag Read More...
Posted Liz N
byHi fellow lymphers, you are all very welcome to visit my blog about living with Lymphedema: www.lymphedemagir Read More...
Posted Jenny Sterner
byWe need your help spreading the word about the Lymphedema Treatment Act!To assist you in doing so we would be Read More...
Posted Jenny Sterner
byFor those of you who have not yet been to the new Lymphedema Treatment Act website I encourage y Read More...
Posted Alexa Ercolano
byHey, everybody!! I joined this site to hopefully bring more visitors to a blog I recently started for young a Read More...
Posted Jenny Sterner
bySince my last update we’ve picked up one more cosponsor – Congressman Lewis (GA-5) &nd Read More...
Posted Jenny Sterner
byDear HR 4662 Supporters, Due to Congress having been on recess, and everyone’s attention being focuse Read More...
Posted Jenny Sterner
byAs I thought might occur after the election, people are asking me “If my Representative is not yet a c Read More...
Posted Jenny Sterner
byHere is how the HR 4662 Cosponsors fared: Of our 53 cosponsors (complete list b Read More...
Posted Sharon Koller
byI'm unable to put on short stretch bandages of my arm & hand due to neuropathy. It is impossible to get Read More...
Posted Barbara Pilvin
byI've sent letters and my own story to anyone in or outside Congress who might, just might, read them and get m Read More...
Posted Jenny Sterner
byDear HR 4662 Supporters, This update is devoted to announcing a new way in which you can help. We a Read More...
Posted Jenny Sterner
byHello, I heard that some people were having trouble with the links to the American Cancer Society. Th Read More...
Posted Dale Rutala
byHi, I am new to this site. I recently received information on a compression product called Farrow Wrap. It cla Read More...
Posted Kathryn Krastin
byIf you have been following me on my BEYOND WORDS LIVE radio show on BlogTalkRadio you will have heard several Read More...
Posted Kathy B
byHello all, I'm new to this website. I am a member of another LE website and find it very helpful.& Read More...
Posted Kathryn Krastin
byHey, just wanted to share with you all a book that I discovered through a place called LYMPHEDEMA PRODUCT Read More...
Posted Kathryn Krastin
byI hate change when one has been having a great response to Blue Cross Blue Shield in the past with the p Read More...
Posted Kathryn Krastin
byIn case you missed the show, you can still hear the show at http://www.blogtalkradio.com/rlrn/2010/ Read More...
Posted Steve Norton
byHello Lymphedema Community members! As you can see we are nearing the 500 member mark which is w Read More...
Posted Kathryn Krastin
byOkay... So if I get another prescription from my doctor here in Austin, TX, vowing to not to go t Read More...
Posted Kathryn Krastin
by... but this is certainly a story of someone taking a different perspective of her ordeal with MS and ta Read More...
Posted Kathryn Krastin
byWhat do we know about surgery as a possible treatment for lymphedema? My boyfriend mentioned that his nephew Read More...
Posted Kathryn Krastin
byWhat do y'all think about creating a You Tube video where we have folks taking a cam picture of each of u Read More...
Posted Kathryn Krastin
byJust sent out my first gift message to Bernadette, which read: Thank you soooo very much. I'm a bit new Read More...
Posted Kathryn Krastin
byBelow is a sample open letter to Congress; however, it seems to focus on cancer related lymphedema --- any inf Read More...
Posted Kathryn Krastin
byIn running across sample letters for writing to the Governor for an awareness day, NLN has posted on their web Read More...
Posted Kathryn Krastin
byWhen we end up going to physical therapy (especially as a result of needing wound care for our lymphedema), we Read More...
Posted Kathryn Krastin
byAfter the launch date of REAL LIFE RADIO NETWORK (February 15th), my show on Saturdays (titled as above), from Read More...
Posted Kathryn Krastin
byHas anyone tried to get a Lymphedema Awareness Day established by the Governor of their State? Oftentime Read More...
Posted Kathryn Krastin
byI have been getting frustrated at times with the hurdles that are sometimes placed in front of us -- even by t Read More...
Posted Terry Cawley
byI have a success story to share regarding my treatments program for secondary lymphedema brought on by an infe Read More...
Posted Jennifer Hovatter
byDid everyone see where they are telling people not to have mammograms until they are in their 50's? Read More...
Posted Connie Earl
byI find myself in a new community, with a message to share. I have recently celebrated my 10th anniversary of s Read More...
Posted Karen Reusch
byWhat do people recommend as the easiest donning devices for lower extremity compression garments whe Read More...
Posted Jennifer Hovatter
byCan everyone please help get an all american Lymphedema walk established-all american-we need to send le Read More...
Posted Jennifer Hovatter
byHi, does anyone know how I can get help setting up 501 c 3 for my husband's lymphedema founda Read More...
Posted Jennifer Hovatter
byHi everyone, Mike Bruns and I(Jennifer Hovatter) are going to start a chat session and want to invit Read More...
Posted Nicole Major
byAnyone have any comments on this new study that has hit the news and the NEJM?
Posted Jan McKelvey
byNorth Carolina House Bill 535 Health Insurance Coverage/Lymphedema was filed in the House on March 11, 2009. Read More...
Posted Diana Wahl
byHi, I was diagnosed on 2005 with brast cancer. I developed lymphodema 1 year later. Ihave been thr Read More...
Posted Sherie Bante
byI have been living with lymphedema for 30 year in my right leg and just last year , lymphedema started in my l Read More...
Posted Laura Voss
byQuestion... I have a patient that is stage 4 Breast Cancer. She is currently in chemo and radiation, an Read More...
Posted Jennifer Metcalfe
byI have a silly question... I wear a sleeve with either a glove or gauntlet. I never know which is Read More...
Posted Cheryl Drury
byI hate to face the coming of summer every year! Everyone is out and about with cute little short Read More...
Posted Brandi French
byI was wondering if you have treated any peds? My sister babysits for a 3month old with Turner's Sy Read More...
Posted Donna Gulick
byRecently saw a patient for a consultation regarding prevention of developing lymphedema. She is 2 weeks Read More...
Posted Jo Myers
byHOW DO I FIND A massage therapist with lymphatic therapy training. I live north of Houston, TX. T Read More...
Posted Jennifer Metcalfe
byHi all, I have lymphedema of the left arm/hand due to breast cancer surgery. I have had swelling f Read More...
Posted Pat Nave
byJust wondering if anyone else out there is exhausted from constantly dealing with Lymmphadeema. I am doing a g Read More...
Posted Susan Hughes
byI have LE in my left lower leg , the result of 7 surgeries on my left knee since 2004. My right le Read More...
Posted Barbara Pilvin
byI'm terrific at thinking up titles; sometimes it's hard to think up the text to go with one, but my Read More...
Posted Kathy Bates
byOf interest? Http://ReversingLymphedema.com If you have questions please contact me through the website cont Read More...
Posted Karen Berry
byI need assistance finding medical supplies for my wounds - I can't find any Aquacel wound dressings excep Read More...
Posted Jennifer Kramer
byHi Everyone, I have primary LE in both legs and have since childhood. I didn't have any second opinions Read More...
Posted Karen Berry
byI have had lymphedema in my legs for over two years now and can't walk- it was almost a year before I kne Read More...
Posted Sylvia Shaw
byHi Everyone, I am new to this community, too. I did notice slight swelling in my feet and lower legs on and Read More...
Posted Pat O'Connor
byI was born with lymphdema in 1952 and have actually traced it in my family through the late 1800's. Read More...
Posted Natalie Algeyer
byWell I am so glad my husband found this site. I have lymphedema of the R leg with flair ups in my R arm. Read More...
Posted Kenya Clark
byI just want to say hello to all in the community and that I am so glad that there is a forum for us. Kudos to Read More...
Posted Ann Ketter
byHello everyone. I am so pleased to see this community created. So much info I've gotten so fa Read More...
Posted Carol Mooney
byLymphedema of arm/chest due to removal of lymph nodes under arm was controlled by message of the affected area Read More...
Posted Linda Malmberg
byHi everybody! I'm so excited about this new website that Steve has made available to us. I th Read More...
Posted Charlene Schroeder
byI am 42 years old and have been living with primary lymphedema in my lower extremities since I was about 12 or Read More...
Posted Patrice Harman
byHi everyone! I'm new to this community, although I'm not new to lymphedema. I am a breas Read More...
Posted Steve Norton
byDear LymphedemaCommunity.com Member Greetings to our growing community of lymphedema-focused professi Read More...