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  • cosmina cocan I've written , but nobody put me in mind . Expect some feedbacks !!!!!!!!!!!!!!!!!!!!!!!!!!!!1
    December 11, 2011

  • Jenny Sterner Today, we lost someone from our community who meant so much to so many of us, including myself.  I will miss Pat terribly, although we never met in person.  The below is reposted from the Advocates for Lymphedema Yahoo group; it is truly a very sad day.  :( It is with great sadness that I must send this message. Pat O'Connor, Founder of Lymphedema People, Huge Advocate for those who have Lymphedema, etc., passed away this morning in his sleep,per a message that I received via the Lymphedema People Facebook Group page per his son. He leaves behind a huge group of friends and family including daughter - Emily and family, son - Patrick Jr and family as well as several sisters and other family members. Once I have more information in regards to funeral/memorial I will pass on all information. Nessa
    August 14, 2013

  • Carol Link I have lived with lymphedema for the past 20 years.  I would like the community to be aware of the potential side effect of lymphedema which is cellulitis.  I contracted cellulitis about 15 years ago.  My Gyn oncologist called it the "flu which settled in my leg"!  I did have flu-like symptoms but my right leg was red and painful to the touch.  Finally I went to an emergency room where fortunately the correct dx was made.  My primary MD "aspirated" the infection which I later learned was probably the worst treatment he could do.  Please make sure MD and healthcare workers are thoroughly  educated in the treatment of lymphedema.   I was very close to losing my leg because of the infection.  I am very grateful to the professionals who are aware of the treatment of lymphedema.
    August 19, 2013