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Thelma Donaldson
Good Afternoon, I have been a lymphedema patient (lower left extremity) for almost 38 years. It started at the age of 14. I haven't had the best heath insurance which makes it hard for me to obtain compression stockings. Do anyone know of an organization that can help me obtain the stockings. I have to get a custom made stocking because of different operations that have been done on my leg.
June 7, 2017
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susan fallstich
I have lymphedema in both legs and am in pain, especially my right leg in which I have arthritis in my knee. It has been very hot today and I could not bear to wear my wraps. I have taken paracetamol, but it doesn't do much. Any ideas how to stop the pain? I'm in tears.
May 26, 2017
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Anne Rock
Hi everyone. This is only my second post. I have been fairly successfully treating my left leg primary lymphedema for 3 years now. From what I have read here, I guess I have been lucky in that I don't have pain with it and have not lost much in range of motion. Three years ago I began working with a therapist who was able to get some reduction, although of course my left leg is still larger than my right. At the same time I got a CircAid legging, which I later replaced with a JoviPak InnaBoot, which was much better for me. Compression hose during the day and legging at night.
I also use a Bio Compression pump for an hour 3 times a day. I hope to replace that pump soon with a Lympha-Press Optimal, so it can drain my torso before bringing it up from my leg. I look forward to learning more from the rest of you. Although my doctors have been wonderful and very encouraging, we seem to lack enough specialists for Lymphedema treatment, so it helps to learn all we can by ourselves.
January 6, 2014
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Danny Dorroh
My 61-year-old brother has had lymphedema in his left leg ever since he had radiation therapy for cancer 19 years ago. His leg is extremely large, and he has a badly damaged knee. The leg has been a physical burden for him for a long time, and it has deteriorated to the point that he can no longer walk. The strain of having to carry the leg has left him with an injured back and shoulder. He made an appointment with an orthopedic surgeon last week, and is now scheduled to have the leg amputated this coming Tuesday. I can understand my brother wanting to be free of the burden of the leg, but I don't think he has considered all the ramifications. I only have anecdotal evidence at this point, but it is my understanding that after the leg is removed the lymphedema will simply migrate to other parts of his body. Is that always true, or is there a chance it won't? I read a blog from a man who had had his leg removed due to lymphedema, and he said the swelling had moved to his scrotum and his other leg. Is that necessarily going to happen to my brother?
May 10, 2017
