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Laura Draper
Hello one and all. I just joined Lymphedema Community. I had never heard of this disease until a trip to the ER. The doctor there said I had Lymphedema of my left leg. I got a referral for physical therapy at Motion Recovery in Sacramento. I'm awaiting authorization for my compression garments. Laura Draper
October 30, 2013
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Luis Gonzalez
Wanted to say Hello to the Community. And also to tell everyone that I have a Great Lymphedema Program here in Cape Coral Florida . Please let me know if you are needing any information or help in getting the right treatment for a friend or Loved one. Looking to make a difference!!!
October 9, 2013
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L D
hi all new to the site. LI member here.
October 24, 2013
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Leeanna c
hi everyone, I am a patient of primary lymphedema. I am 26 years of age and completely mortified of the near future because of this relatively unknown disease...its so terrifying to not be able to know exactly what is going on inside you, not be able to stop the deterioration, and for doctors to tell me they cant help me...specialists online have recommended that weight gain causes adverse effects on the limb, so how am I supposed to have kids? how can I live a fulfilling life ? whatever I do from here forth is at my own risk, I have to stop and think will this action do more damage to my condition!!! not able to have definitive do's and don'ts makes life such a drone, im so reluctant to do anything at all....his condition has make my days feel like punishment...some people tell me look at these cancer patients and at their struggle...as usual, the ignorance of people to this condition leads them to compare us to others. However unlike cancer patients, there is no real treatment across the board for us lymphedema patients... I reside in Trinidad, I don't have access to any of these therapy centers in America, or decongestive pumps etc.. There is no doctor here who knows of any of these forms of treatment. I was told by 3 doctors to use the compression, and continue living my life ....but what are my limits?! what will happen to me!! there is nobody here who can monitor me to be able to tell me if im improving or deteriorating!!!! im basically fighting this thing on my own! I thank God I encountered this community I am hoping everyone here help each other and be open and honest because I believe the people who have undergone this battle will have the most valuable contribution to help the rest of us.. Please share your experience, share with me what works best for you, tell me what are the things you can and cannot do, I beg of you to please help me through this
July 20, 2013
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rafael zuniga
hello . im rafael i have lyphedema brought on by being extremely obese . i have always been overweight and for the most part lived a normal life until 2008 when i started gaining more weight than ever. As an adult my weight has fluctuated from 400- 500lbs I'm 6ft tall . Believe it or not i stayed very active and lived a good quality of life . I loved to eat and drink alcohol like a fish( :D ). In time i became a alcoholic and my activity level decreased and my weight sky rocketed to 830 lbs by july 27 2011 ,which was when i was hospitalized with a leg infection and diagnosed with Lyphedema .both of my thighs swelled up very bad i was probly carrying 30 lbs on each sack. walking was a chore and wearing shoes was impossible . To make a long story short I sobered up quick overcame alcoholism then started to eat healthy . no more fast food . i started preparing my own meals . from july 2011- sept 2012 i lost 75 lbs my weight was 753. i was very disappointed in my self but knew that i had to to keep fighting. on october 1 2012 i joined loseit.com and started tracking my calories. i started to realize what my calorie intake was rather than guessing. i started eating more veggies and eating more lean meats like chicken and fish. as of october 11 2013 i weigh 517 lbs. thru out my weight loss my thighs were getting smaller but they were still very swollen. my legs and feet went down to normal and my left thigh deflated. i did not have medical insurance until sept 1 2013. i was determoned to lose weight and try and beat lymphedema. thru my own research i have read that it is a controllable but not curable disease . i have been in Lymphedema therapy for the past 6 weeks and i have had excellent results. i lost about 30lbs from my treatment most of the protein fluids from my right leg. my walking has improved tremendously and i can now see the light at the end of the tunnel . i have endured much heart ache and pain with my obesity and lyphedema . not only was I huge but my legs looked freakish. it was very difficult , but i am a fighter and always keep a positive attitude in life, i expect the best but also prepare for the worst . diet exercise and wrap treatment is key in my opinion. If there is anyone that feels there is no hope .there is . never give up . this is a life battle . i hope my post can help anyone that feels helpless. my goal is it get down to 350lbs by may 2014 and walk a marathon or something one day. good luck to all!!
October 13, 2013
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