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"Share Your Story" Campaign

• Posted by Jenny Sterner September 19, 2010 - Filed in Lymphedema Treatment - #  - 5,245 views

  Dear HR 4662 Supporters,

  This update is devoted to announcing a new way in which you can help.  We are launching the “Share Your Lymphedema Story” campaign!  Complete information is below.

  I am thrilled to be able to attend the National Lymphedema Conference taking place this week, and for those of you who will also be there I look forward to meeting you in person.

  Please continue to write Congress asking members to cosponsor our bill and do let me know if you have any questions or need any additional information.

  Many thanks,

  Heather Ferguson

  hmff@earthlink.net

   

  The Lymphedema “Share Your Story” Campaign

  What will my letter be used for?

  Your letter will be shared with members of Congress and other groups which we are seeking support from for HR 4662.    

  How to participate

  Send to:  tories@LymphedemaTreatmentAct.org">Stories@LymphedemaTreatmentAct.org

  Subject Line:  My Lymphedema Story

  Format:  Please place the following at the top of your letter

                  Name

                  Complete Address

                  Email Address

   

  Length:  That is up to you but we suggest that you try to not exceed one typed page.

  Suggested Content:

                 

  • Is your lymphedema primary or secondary?
  • What is the cause, if known? 
  • If the result of cancer please specify what kind of cancer.
  • The age of onset.
  • The length of time before you were diagnosed.
  • The length of time until you were able to begin treatment.
  • Have you ever had a problem accessing treatment or finding a qualified doctor or therapist?
  • Has your insurance ever denied coverage for any portion of your treatment?
  • Have you ever had to go without treatment due to lack of insurance coverage?
  • If yes, what were the consequences?
  • How has lymphedema impacted your life?
  • What would this legislation mean to you is passed and how would it improve your quality of life?

  Format:  Please place the following at the top of your letter

                  Name

                  Complete Address

                  Email Address

   

  Length:  That is up to you but we suggest that you try to not exceed one typed page.

  Suggested Content:

                 

  • Is your lymphedema primary or secondary?
  • What is the cause, if known? 
  • If the result of cancer please specify what kind of cancer.
  • The age of onset.
  • The length of time before you were diagnosed.
  • The length of time until you were able to begin treatment.
  • Have you ever had a problem accessing treatment or finding a qualified doctor or therapist?
  • Has your insurance ever denied coverage for any portion of your treatment?
  • Have you ever had to go without treatment due to lack of insurance coverage?
  • If yes, what were the consequences?
  • How has lymphedema impacted your life?
  • What would this legislation mean to you is passed and how would it improve your quality of life?