Updates

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  Margaret De Rose: Hi Jim
  I have lymphedema in both legs as well.  What do you wear to exercise?  I have not been able to find any compression wear (I need full leg panty hose type) that does make me feel like I am working out in a wet suit.  Can't hike in CA with the...  moreHi Jim
  I have lymphedema in both legs as well.  What do you wear to exercise?  I have not been able to find any compression wear (I need full leg panty hose type) that does make me feel like I am working out in a wet suit.  Can't hike in CA with the hot weather in these hose.  Have looked at the compression wear for marathon runners but it is not of therapuetic strength.  Thanks for your advice.  

  • April 23, 2015
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  Jim Miller wrote a new blog entry:

  

  Kidney functions and lymphedema?

  Has anyone found a relationship between primary lymphedema and kidney functions? Or dysfunctions, I should say? I've had primary lymphedema since 1967, it's well managed since 2009 with CDT, MLD, nightime compression, daily Class IV garment wear, and good...

  • #lymphedema
  • #kidney
  • #primary
  • #creatinine

  • July 28, 2014

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    Sharon Vogel, CLT Hello, Mr. Miller, I came across your blog question which correlates to another blogger's similar question posed to Dr. Stanley Rockson of LE&RN: https://lymphaticnetwork.org/ask-experts/e/stanley-rockson#496

    • December 2, 2017
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  Jim Miller commented on Jim Miller's blog entry.

  • #change swelling seeping different

  • May 3, 2012

  • Christy Kim and Brenda Grosso like this.
  • 
    Brenda Grosso Thank you for sharing, it certainly makes sense and has given me food for thought.

    • April 23, 2012
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    Jim Miller Food for thought? Ah, yes, we are what we think?

    • May 3, 2012
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  Jim Miller is now friends with Annie Ross.

  • April 13, 2012
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  Jim Miller Oh my, now wonderful to see so many new members. When I joined there were 300 in the community. Now we're over 1,100. How great is that!

  • November 26, 2011

  • Lymphedema Community Staff like this.
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  Jim Miller is now friends with Steve Norton.

  • October 26, 2011
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  Laurie Kulski: hey there Jim...I'm glad you liked what I wrote...straight from my heart.  Life is great!  I really do take it all in as I can tell you do too.  I'm sure you're an inspiration to those who meet you.   I'll for sure check out your blog!  Take care...Laurie

  • September 13, 2011
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  Cindy Lichtenhahn: Jim have you ever worn Juzo silver before?   I'll be checking on your blog, please update on the Juzo, on the cold days you might even double up on the compression.  Put older over newer sometimes layers are ok.  Oh Do you guys live in Boulder? I...  moreJim have you ever worn Juzo silver before?   I'll be checking on your blog, please update on the Juzo, on the cold days you might even double up on the compression.  Put older over newer sometimes layers are ok.  Oh Do you guys live in Boulder? I live in Grand Junction.  Small world.  

  • September 13, 2011

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    Jim Miller I saw that you're in GJ. Good luck getting some programs started there. I'm also a "founding member" of our South Metro Lymphedema Support Group. We meet at the Highlands Ranch Library every 3 months - next up is Oct. 6 at 7 PM. My massage therapist...  moreI saw that you're in GJ. Good luck getting some programs started there. I'm also a "founding member" of our South Metro Lymphedema Support Group. We meet at the Highlands Ranch Library every 3 months - next up is Oct. 6 at 7 PM. My massage therapist (also Klose trained) will be...    

    • September 13, 2011
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  Jim Miller is now friends with Cindy Lichtenhahn.

  • September 12, 2011
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  Jim Miller is now friends with Lymphedema Community Staff.

  • September 12, 2011
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  Jim Miller → Angelica Flores: I'm just seeing the comments here and I can't believe somebody told you, with primary lymphedema, to stop wearing garments? What were they thinking? I can't get by a day without mine (on the left leg - had it 45 years but didn't get good treatment until...  moreI'm just seeing the comments here and I can't believe somebody told you, with primary lymphedema, to stop wearing garments? What were they thinking? I can't get by a day without mine (on the left leg - had it 45 years but didn't get good treatment until the past two). But the right leg, where it just stared showing up two years ago, can go without a garment some days. I usually wear one of those over the counter dress socks from Juzo and it handles the swelling fine until I go on a long bicycle ride then I need an OTC thigh high (Juzo again). 
  Do you do any MLD on your own leg? That helps me. And plus I have elevated my bed about 6" at the foot, with a modified bed frame, and that angle (feet higher than the heart) makes a huge difference every day. Except my wife isn't too keen on the sleeping position - she loves me enough to deal with it. As for the pump, I'm surprised you don't see benefits from that. If you decide to give it up, let me know and maybe I'll buy it from you.
  Best of luck. You are your own best doctor!  less

  • September 10, 2011
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  Jim Miller is now friends with Sandra Morris.

  • September 9, 2011
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  Jim Miller → Rani Bechar: Welcome. As you can see from the various threads, people are in need of knowledge, understanding, compassion and care - which this community provides so well.

  • June 24, 2011
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  Jim Miller → Ellie Y: I agree with Michele. Keep it clean, get past it and start  your compression wraps as soon as you can.

  • June 24, 2011

  • Michele E. likes this.
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  Jim Miller is now friends with Ellie Brummett.

  • June 24, 2011
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  Jim Miller wrote a new blog entry:

  

  Change management and Lymphedema

  One thing I've found helpful in my 43 years of managing my own primary lymphedema (mostly in my left and now entering right leg) is associating changes in my condition to changes in my lifestyle or activities. I often ask myself, and frequently see simila...

  • #change swelling seeping different

  • June 23, 2011

  • Christy Kim and Brenda Grosso like this.
  • 
    Brenda Grosso Thank you for sharing, it certainly makes sense and has given me food for thought.

    • April 23, 2012
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    Jim Miller Food for thought? Ah, yes, we are what we think?

    • May 3, 2012
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  Michele E. is now friends with Jim Miller.

  • June 23, 2011
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  donna brown: Hi! Your photos look just lilke my leg. I have it toes to hip. I just got approved to rent the flexitouch machine. Have you tried any machines to help you?

  • June 23, 2011

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    Jim Miller I've tried flexitouch and I think it's a good machine. It's just that my restless leg is usually exacerbated by compression and the pump (at...  

    • June 23, 2011
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  Jim Miller → Ellie Brummett: Hi. I'm looking for patients with leg lymphedema to compare some notes and findings with. Is your LE primary or secondary? Upper body or legs? Thanks for any thoughts you might have.

  • May 17, 2011

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    Ellie Brummett I tried to send you a message but it wouldn't go through. I have primary lymphedema in my lower right leg.

    • May 17, 2011
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    donna brown I have secondary lymphedema of the right leg. It started 4 months ago. Not sure what caused it, but I'm still trying to get the leg down. The top of the foot and calf are...  

    • June 23, 2011
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  Jim Miller is now friends with Amit Gowda.

  • May 4, 2011