Just wondering if anyone else out there is exhausted from constantly dealing with Lymmphadeema. I am doing a good job at
keeping up with treatment, but , I get fustrated trying to keep up. Besides the expense , I meen the work ! ??
4 comments
Gayle YimoyinesI've been dealing with it for almost 20 years and there are times when I've wondered if it is worth all the time and effort. I am also exhausted, I'm angry,and I still ask why me. I wish it were different, I wish life could be easier, I wish I never... moreI've been dealing with it for almost 20 years and there are times when I've wondered if it is worth all the time and effort. I am also exhausted, I'm angry,and I still ask why me. I wish it were different, I wish life could be easier, I wish I never had to deal with CA, but I did, and then I visit my sons and my grandchildren and I know why, Day to day it's a royal Pain in in the ass. I live in FL and the heat alone makes me want to go sans stockings or wraps, but I work on my feet for 8 to 10 hours a shift, so I deal with it best I can. I may not be making a fashion statement, but the mummy look is in as far as my #1 grandson is concerned. less
Jim MillerHello all. I've had LE in my left leg since 1967, the year I graduated from high school. It is a hard row to hoe, and it does change your life and more than just a bit. I've worn the stockings and tried the pumps and the massages. Only this month have I... moreHello all. I've had LE in my left leg since 1967, the year I graduated from high school. It is a hard row to hoe, and it does change your life and more than just a bit. I've worn the stockings and tried the pumps and the massages. Only this month have I found the Health Links Clinic in Boulder, CO with people who actually know how to help me manage this. Even with the new compression therapy and smaller leg and different stockings, I know I'm in for more management time.
The alternative is worse. As my neighbor says when I ask her how her day has been, "Another day above ground! Can't complain!" less
Laura EvartsAll things worth having are worth working for, including and especially good health!! I have been through years of hard work controlling lymphedema and caring for my legs. My husband has sacrificed a good deal of time helping me to obtain that goal. ... moreAll things worth having are worth working for, including and especially good health!! I have been through years of hard work controlling lymphedema and caring for my legs. My husband has sacrificed a good deal of time helping me to obtain that goal. While we both get frustrated when there is a flareup or new issue, we know the alternative is a great deal of pain, immobility and illness. Have I been exhausted to the point of tears? YES!! Have I grieved life the way it was before? Yes. I have read a few books that have helped me to work through some of these feelings. I think they actually helped me put words to some of what I was feeling. I've read Living Well With Lymphedema by Ann Ehrlich; Alma Vinje-Harrewijn, PT, CLT; and Elizabeth McMahon, PhD as well as Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon, PhD. The second book has sections to write in and work through some feelings and gives advice as to when you should seek professional help. I highly recommend... less
Carole TouzalinIt is exhausting both physically and emotionally. I have worked with a number of therapista over the past few years and it is hard to keep up with the schedule and the exercises. I also feel SO let down when therapy works for awhle and then returns to a... moreIt is exhausting both physically and emotionally. I have worked with a number of therapista over the past few years and it is hard to keep up with the schedule and the exercises. I also feel SO let down when therapy works for awhle and then returns to a former state of swelling. I have met wonderful people woking with LE and that keeps me going. Have a good day. Let's both relax = It's Sunday.
