Browse Members

  • RACHEL KARIA Thank you guys for the warm welcome. Am happy to be part of this community, i live in Tanzania and here there is no information on lymphedema no clinics or therapist, I have primary lymphedema of the right foot for seven years now, diagnosed myself through google search that was after fruitless trips to different doctors. Happy to be here at least i can get information on how to manage it. 
    May 17, 2016

  • Cindy Stanbery Anyone else have both lymphedema and claustrophobia?   Any tips for surviving compression?
    May 24, 2016

  • Carol G Does anyone else have a connective tissue disorder such as Ehlors Danlos Syndrome and also lymphedema?  If so, how has it affected your lymphedema course?
    May 6, 2016

  • Pamela Brown Hi Everyone I have issues with my left arm & hand swelling all the time. I have had multiple therapy treatments, wraps and compression sleeve & glove, but the swelling remains. I had 12 lymph nodes removed due to breast cancer in March of 2014. I still have my port in and doctor won't take it out till 2017. My arm & hand is in constant pain & I'm exhausted from all this. Any suggestions on how to cope with this.   Thanks
    April 22, 2016