Updates
-
jill labiosa hi Everyone! I have had lymphedema for thirty years.. Started when I was19. I have been through the stockings, pumps etc etc and unfortunately the treatments available in 2012 are still as antiquated as back I. 1982 when I wS first diagnosed..I went... morehi Everyone! I have had lymphedema for thirty years.. Started when I was19. I have been through the stockings, pumps etc etc and unfortunately the treatments available in 2012 are still as antiquated as back I. 1982 when I wS first diagnosed..I went three years not properly diagnosed, and when I finally was in NYU, the same treatment t plans all are pretty much the same..HOWEVER what has changed..are the many pele who now suffer with this condition, and the support groups out there. when I was first diagnosed, I was a young girl.I never felt so alone..There were no books written on te sungect of lymphedema, no support groups..I fel I had to constantly elaine myself, and was so very self conscious of my right leg.II I was told it was lymphedema prefix primary..meaning, I was born with this, BUT it surfaced as a teenager..The fact that I couldn't wear normal shoes, wS a tough o e for me, ESP as a teenage girlI have 2 daughters 27 and 19 who have always been sympathetic to my situation.I have had a supportive family ..They know how important it was for me to keep elevated and keep the swelling down..The tissues have gotten very fibrous as I've gotten older, a d it's more difficult to massage thel
Lymph, as it was when I first develped it..I feel the last 10 years it's gotten ore difficult to ma age even with the pump and stockings. It looks like a baby elephant I carry with me..Even though lymphedema hasbecome a part ofme..sometimes it's still so difficult to accept. For example, my solder daughter is having a destinatio wedding g in punta Cana I. July,finding a dress that covers the leg, S well as nice pretty shoes that will make me feel goo that day.. I will be happy to Talk to anyone of you. I. Sure you know EXACTLY how I'm feel g, because from reading hour comments, I can relate to each and everyone of you! I wish they had these groups back I. Tne day when tis all started..I think it would have helped tremendously, on every level. k guess cor those who have struggled with this condition for as long as Ihave knows EXACTLY what I mean! I hope to hear back fro. You, and am excited to have found this site. Have a GREAT weekend to you all! less
-
jill labiosa has just joined the community. Say hello!
Loading ...
Info
-
Classification
Patient
-
Gender
Female
-
Last Name
labiosa
-
First Name
jill
