Wastewin Joni WaukechonHi. I am completely new to this. I am the step-mother(she prefers to call it) to an 11 year old beautiful little girl (whom I am raising as my own), she has lymphedema in her left leg. She has been thru many hard trials in her life from her birth mother... moreHi. I am completely new to this. I am the step-mother(she prefers to call it) to an 11 year old beautiful little girl (whom I am raising as my own), she has lymphedema in her left leg. She has been thru many hard trials in her life from her birth mother abandoning her and being shifted from home to home to living with lymphedema since birth. I am hoping to educate myself on the basics at first because I have no idea just what exactly it is I am dealing with. An angry pre-teen for sure. I am in the medical field myself (a RN/BSN - currently in med school) so I understand a little. Any information, support would be greatly appreciated. She has just recently come to live with us on a permanent basis, so thats a blessing... I am just wondering about clothing and shoes. We ordered her shoes last year, but my questions are, are there any places out there for a little girl/teen to get 'cool' clothing from while suffering from this condition? I have so many other questions, this just seems to be the most pressing issue she has at the moment. My biggest worry/fear is her leg has gone for so many years without the right treatment...is the possible damage, growth reversable? We live in Rapid City SD (such a rural area), any ideas you could share I would greatly appreciate. Thank you. less
September 14, 2012
Staff Certified Lymphedema TherapistWow, how amazing that you are now caring for this young lady! I would start with finding a good lymphedema therapist for her. You can do a therapist search through Nortonschool.com. Therapists can be your best resource for ideas for shoes and... moreWow, how amazing that you are now caring for this young lady! I would start with finding a good lymphedema therapist for her. You can do a therapist search through Nortonschool.com. Therapists can be your best resource for ideas for shoes and clothing. Stay in touch and best of luck to you both!
Deleted Member
Joni,
I sent a packet of information out yesterday for you. If you need a therapist referral search please contact me and i will be happy to do one for you.
Bernadette
Wastewin Joni WaukechonThank u so much Bernadette. I have found her a therapist here at Rapid City Regional Hospital, Rapid City SD, her name is Carrine, she gave me info so I could quickly educate her new school here in town before she started. She is taking to her new life... moreThank u so much Bernadette. I have found her a therapist here at Rapid City Regional Hospital, Rapid City SD, her name is Carrine, she gave me info so I could quickly educate her new school here in town before she started. She is taking to her new life well. I am hoping to take a break soon and am considering seeking education in lymphedema and becoming a CLT, any information u could assist me with, with this would be greatly appreciated Thank You so much!!! less
Lymphedema Community Staff
"Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow."
~ Mary Anne Radmacher
Thank You so much!!!