Bonnie Taylor → azurelle nolastname: I know what you are saying. I have CLL and enlarged nodes in the abdomen that have blocked the flow. Yesterday an oncology nutritionist told me that I would always have this condition and that I needed to find a certified therapist who would teach me... moreI know what you are saying. I have CLL and enlarged nodes in the abdomen that have blocked the flow. Yesterday an oncology nutritionist told me that I would always have this condition and that I needed to find a certified therapist who would teach me self massage and it should be a daily regimen. I wear compression hose and wrap my leg at night. Certified therapists appear to be few.
October 26, 2014
azurelle nolastnameI've been told this is life-long damage as well. I've been advised it's going to be random --- some days will be worse than others, some days will be terrible, and there will be no way to tell what "set it off." And that seems to be true. Things were... moreI've been told this is life-long damage as well. I've been advised it's going to be random --- some days will be worse than others, some days will be terrible, and there will be no way to tell what "set it off." And that seems to be true. Things were improving two weeks ago, the swelling was down enough I was finally able to wear an "off the rack" compression sleeve. This...
Bonnie TaylorThe acceptance process is difficult for me at least. I believe the young woman who taught me to wrap my legs, while nice, was not very experienced, so wrapping at night may not be the best. It isn't comfortable certainly. I also thought I was doing well... moreThe acceptance process is difficult for me at least. I believe the young woman who taught me to wrap my legs, while nice, was not very experienced, so wrapping at night may not be the best. It isn't comfortable certainly. I also thought I was doing well with the swelling and my dr. released me to exercise. I was very excited to get on the treadmill. One week later, my...
Lymphedema Community Staff
"Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow."
~ Mary Anne Radmacher
