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  Julie Williams I was diagnosed with stage 2 lymphedema just a few months ago. I have it in my feet all the way op below my chest. It is miserable. I started therapy 2 weeks ago and have managed to get it down with massage and being wrapped. The swelling started in...  moreI was diagnosed with stage 2 lymphedema just a few months ago. I have it in my feet all the way op below my chest. It is miserable. I started therapy 2 weeks ago and have managed to get it down with massage and being wrapped. The swelling started in January while I was in the hospital with my husband that suffered a major stroke. I could not sleep and was under so much stress. We were in the hospital for 30 days and I am now his caregiver full time. I had to quit my job of 14 years. Life seems a little rough at the moment and I feel like I may never look normal again. At age 50 last summer I was wearing a sz 8 and riding horses with my husband. I have gained about 40 lbs and am extremely depressed. I need support for sure so glad to find this site    less

  • July 21, 2016

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    Deleted Member Hi Julie. So sorry you are having that challenge. This message board is really, really quiet, so it might not have the support you are looking for. I am new also and couldn't find anyone willing to chat. You might want to check out the breast...  moreHi Julie. So sorry you are having that challenge. This message board is really, really quiet, so it might not have the support you are looking for. I am new also and couldn't find anyone willing to chat. You might want to check out the breast cancer.org lymphedema discussion board. I know you don't have breast cancer, but there are a lot more people there. Still keep coming here though. We need to build a community of people who want to talk about lymphedema.  

    • July 24, 2016
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    Karen Ryan Hi Julie. I am so sorry to hear about your diagnosed lymphdema I read your post and it rally hit home with me as I was also very active like to fish crab, hike, bike, exercise, garden and much more and all this has got me down I cried when I read your...  moreHi Julie. I am so sorry to hear about your diagnosed lymphdema I read your post and it rally hit home with me as I was also very active like to fish crab, hike, bike, exercise, garden and much more and all this has got me down I cried when I read your post because that is how it makes you feel. You can get your life back woth proper management and PT there maybe somethings you wont be able to do the same but I keep trying with the proper compression garments and PT and the PT exerices and wrapping so far I am controlling mine to a poing but still very new to having it myself so I dont know what the long term out look is yet lets all pray it gets more mangable with time  less

    • August 3, 2016
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    Sue Kenyon consider looking into the surgery I just had, is you lymphedema from a cancer surgery? Google, Dr David Chang at University of Chicago. I am very active as well, I'm 61 and my daughter and I had planned to hike the AT. Now I'm recovering from surgery, so...  moreconsider looking into the surgery I just had, is you lymphedema from a cancer surgery? Google, Dr David Chang at University of Chicago. I am very active as well, I'm 61 and my daughter and I had planned to hike the AT. Now I'm recovering from surgery, so maybe next year for me. Please hang in there.  

    • August 6, 2016
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  Julie Williams has just joined the community. Say hello!

  • July 20, 2016

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    Lymphedema Community Staff Welcome!

    • July 20, 2016
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