Marge Naab → Allie C: Hi Allie the wrapping is going very well. It has been 2 weeks and the swelling is going down. Don't know how much longer it will be but when it is right time I will go to a compression sleeve.
November 14, 2016
Allie C
So happy to hear that. I have a reduction phase that was around 2 months, so I know it can be a lot. But, so worth it! Even if it doesn't go down as much as you like, you know it's healthier.
Marge NaabMy lymphedema is in my left arm and I have carpal tunnel on my right hand. I need surgery but they can not give IV in left arm. My doctor said there is IV in right arm to give me nova cane and left arm would have IV to put me to sleep but because of... moreMy lymphedema is in my left arm and I have carpal tunnel on my right hand. I need surgery but they can not give IV in left arm. My doctor said there is IV in right arm to give me nova cane and left arm would have IV to put me to sleep but because of lymphedema I have to have IV in my foot. Has anyone else ever have this done because of surgery? Would love feed back!
November 14, 2016
pam stahlmann
Yes worked in hosputal saw done when no other option works. Good luck on surgery.
Marge NaabHad O.T. Today and my arm is now wrapped from my fingers to my shoulder its tight and heavy. Very uncomfortable with my polymyalgia and fibromyalgia. Just hope this helps and the swelling goes down.
November 2, 2016
Allie C
How has the wrapping gone Marge? Have you seen any improvement?
Marge NaabSaw the vascular doctor Monday and lymph node has gone down in size. So we recheck it in 3 months. Starting therapy Friday sure hope it helps
Marge NaabThank you Susan for getting back to me. I am sorry treatment does not help you. I have a compression sleeve but it does not help very much. Maybe the therapy would help. I will post about my ultra sound on Thursday hoping lymph node is smaller. Thanks again
October 10, 2016
Marge NaabThank you so much Susan for the information. Will the swelling ever go down? If it is from an infection will it go down? Sorry I have so many questions but my vascular Doctor made it sound like it came from the enlarged lymph node so if that goes down... moreThank you so much Susan for the information. Will the swelling ever go down? If it is from an infection will it go down? Sorry I have so many questions but my vascular Doctor made it sound like it came from the enlarged lymph node so if that goes down will my arm? The thought of a biopsy upsets me. I will have to stop my blood thinner warfarin and that always makes me nervous. I am antiphospholipid so my blood clots without thinners. I will ask for therapy, the sleeve i was fitted for doesn't seem to be working. So glad I found this group. less
October 8, 2016
Deleted MemberMarge, it is very person-dependent how well it can be treated. Some people get it under control to the point where their limb is normal most of the time and they just have to take precautions in certain circumstances. Others (like me) have lymphedema... moreMarge, it is very person-dependent how well it can be treated. Some people get it under control to the point where their limb is normal most of the time and they just have to take precautions in certain circumstances. Others (like me) have lymphedema all the time and treatment doesn't help much. I pray that you fall in the first group. There is no good answer for people like me.
Deleted MemberMy Dearest*
am Mandi i pick up interest I have something very Vital to discuss with you. Please could you get back to me directly to my private email add ress at ( mandijansen2@gmail.com). for more discussion.Hoping to read your email sooner
once again... moreMy Dearest*
am Mandi i pick up interest I have something very Vital to discuss with you. Please could you get back to me directly to my private email add ress at ( mandijansen2@gmail.com). for more discussion.Hoping to read your email sooner
once again please contact me directly to my private email address at ( mandijansen2@gmail.com ). then i shall get back to you once i receive your email
yours
Mandi
I am new to lymphedema I don't understand how or why I got this. It is my left arm that is swollen and I have one enlarged lymph node in my left arm pit. If lymph node goes down will the swelling in my arm go down too? I have been told that if lymph node...
October 7, 2016
Sharon Vogel, CLTHello, Ms. Naab, I am responding to your blog and hoping that you have found good information from your Doctor about lymphedema. Good sources of information can by found at: https://lymphaticnetwork.org/living-with-lymphedema ,
... moreHello, Ms. Naab, I am responding to your blog and hoping that you have found good information from your Doctor about lymphedema. Good sources of information can by found at: https://lymphaticnetwork.org/living-with-lymphedema ,
https://www.facebook.com/LymphedemaGuru/ , www.lymphnet.org .
Marge NaabI am very glad that there is a support group like this. I am new to lymphadema only 2 months. Started with my left arm it became swollen at first I thought it was a blood clot because I have a history of DVT and PE but ultra sound showed no clot. So I... moreI am very glad that there is a support group like this. I am new to lymphadema only 2 months. Started with my left arm it became swollen at first I thought it was a blood clot because I have a history of DVT and PE but ultra sound showed no clot. So I saw a vascular doctor who said it is lymphadema. Had ultra sound of armpit and I have one enlarged lymph node. Having it rechecked Thursday the 13 to see if it changed. If not or bigger then I will have to have a biopsy. Arm is still swollen very confused I don't know what to think. Never had an infection in my arm no cuts or bites. less
October 7, 2016
Deleted MemberHi Marge, sorry you have to be here. There are several causes of lymphedema. The most common is as a result of having lymph nodes removed from cancer surgery. It can also be primary, meaning that it isn't caused by any particular event - the person... moreHi Marge, sorry you have to be here. There are several causes of lymphedema. The most common is as a result of having lymph nodes removed from cancer surgery. It can also be primary, meaning that it isn't caused by any particular event - the person was just predisposed to it. That could well be your situation. When you go back for the recheck, get a referral to a lymphedema therapist. Regardless of whether you need a biopsy or what the cause of your lymphedema is, you need to manage the symptoms. They can help you with that. less
Lymphedema Community Staff
"Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow."
~ Mary Anne Radmacher
Sharon Vogel, CLT
Goodmorning Everyone, I am a Certified Lymphedema Therapist. Thank you for welcoming me to the Lymphedema Community. ~Sharon
