Updates

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  Sue Baldwin Hi, Charlene: Thanks for your comment. For me a lot of it is aesthetic and I also feel extremely fortunate that it's in my leg and not my arm. At least I can "hide" under long pants and skirts. I hope i don't sound too whiny. I too am hoping for a...  moreHi, Charlene: Thanks for your comment. For me a lot of it is aesthetic and I also feel extremely fortunate that it's in my leg and not my arm. At least I can "hide" under long pants and skirts. I hope i don't sound too whiny. I too am hoping for a medical development. if i were younger I'd go to medical school and specialize in lymphedema. :-)  

  • April 14, 2009
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  Charlene Schroeder: Hi Sue...I have been living with lymphedema for most of my life...i have a genetic defect in my lympahtic system which causes lymphedema...i feel your pain...i was not officially diagnosed until i was 28 years old and the internet came out and i was able...  moreHi Sue...I have been living with lymphedema for most of my life...i have a genetic defect in my lympahtic system which causes lymphedema...i feel your pain...i was not officially diagnosed until i was 28 years old and the internet came out and i was able to research it for myself. Once i found out what it was i was able to find the right places to go for help. Unfortunately, no matter where i turn there is no complete relief...i do what i can to minimize the symptoms and try to be grateful that it is not something more severe and that if i have to have something wrong...at least its my feet...not my face!!! Although I dread this time of year...obviously much harder to cover up and dress comfortably! Maybe in time they will find something that will relieve us all from this!!!  less

  • April 14, 2009
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  Sue Baldwin i have lymphedema in my right leg as a result of a radical hysterectomy in which all the lymph nodes in the vicinity were removed. i am fortunate that i'm not in pain, but my leg continues to swell despite my best efforts and those of my PTs. I am...  morei have lymphedema in my right leg as a result of a radical hysterectomy in which all the lymph nodes in the vicinity were removed. i am fortunate that i'm not in pain, but my leg continues to swell despite my best efforts and those of my PTs. I am continually frustrated that the medical community is so clueless about this condition.  

  • April 14, 2009