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Larry Witanowski
Hi, great to have an online community to help with finding information about lymphedema and its treatment, which can be frustrating to find online. I like this combination of patients and therapists, and the ability to read other peoples experiences in what can be a frustrating and lengthy battle to gain control of a long term problem. My own problems started after a drawn out course of infection with a gastrointestinal virus that took way longer than the usual 4-7 days that most people experience. After 8 weeks of dealing with the symptoms of the viral infection, I started to have swelling in my feet and lower extremities. It took months for my GI tract to get back to its former state of health, and my body payed a hard price in loss of muscle mass, weakness, severe fatigue, and additional symptoms of poor nutrition. Now, about 8 months later, I am on the mend, and working with my lymphedema massage therapist to improve the function of my lower extremities.
March 23, 2017
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Meredith Luhrs
Please help me find a lymphedema doctor in the DC area. I need an appointment very soon. Please email me any information since I may not know how to navigate thie web site. meredithink@ hotmail.com. Thank you. Please ask around if you don't have someone to recommend. Thank you, Meredith
May 1, 2017
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Nikki Brown
I have used 2 different local custom fitters and its always the same issue. Because I have a larger upper arm only certain brands will fit. I'm told Mediven has changed hands. Now they have an unrealistic return policy for alterations. So I just spent $300 for a custom sleeve that I can't wear. Its already been altered once. Its 2 months old. So when your sleeve doesn't fit and has to be returned for alterations your left without a viable option to control your lymphedema. The Kinesio tape has really helped to keep my swelling down.
April 28, 2017
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Shoosh Crotzer
There are still available spots at our upcoming Networking & Educational Seminar for Lymphedema Therapists and those who work with lymphedema. It will be held April 28-30 at Medical City Dallas Hospital, in Dallas, TX. Visit our website at www.lymphseminars.com to see the program (approved for 12 contact hours) that includes 6 top speakers presenting on state-of-the-art topics on lymphedema. These include imaging, genetics, surgery, pediatrics, fibrosis and medically complex patients. All meals are included and we have a discounted hotel pin walking distance. All this info is on the website.
We hope to see many of you there!!!
April 13, 2017
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Rae Scott
I just got a new arm sleeve that is too tight at the wrist :-( Any ideas on how to loosen it up?
April 13, 2017
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Tony M
Hello all. I'm here to show my support to the community please don't hesitate to drop me a message or comment
September 5, 2016
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