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Susan Jones
Has anyone heard of a supplement for treating lymphedma? I was told that there is a "vitamin" whose name starts with a "G" that is used in the treatment of lymphedema. This of course was second information and I just wondered if this was true or not and if so what is it?
June 5, 2012
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Nathalie B
Hey there! Nice finding you guys! I joined this group last week. My lymphedema is in my left foot and I'm lucky to have been able to found out what it was in an early stage. I'm still going through all different emotions, anger, sadness, happiness (of not having something life threatening), frustration, self pity, denial, acceptance, etc. etc. I can't even count how many different feelings I've had since all this started.
In any case I just wanted to say hi and of course ask you a question :-) … have any of you tried the Farrow Microfine Trim-to-Fit Toe Cap? I can provide the link if you haven’t heard of it. It's expensive and I wanted to see if anyone has first hand (foot) experience with it.
PS. Have a great weekend!
July 15, 2011
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Molly Brudnick
i am working with a lymphadema therapist. She is having me tighten the velcro wraps to the pink on the card.
another physical therapist-friend developed a garter belt to attach down the wraps to help hold them up which helps some.
I'm just tired of the continuous wrapping, wearing, washing of wraps with no end in site but death!
March 5, 2014
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Jim Miller
(sorry for the long post but I couldn't stop)
About those compression garments we wear...I know personally how we all are sensitive to wearing our garments in public. Many posts and emails and other blogs are filled with comments about people unwilling to wear their garments "out" in public. Yup, it absolutely does set us apart as "special", that's for sure. So we either don't wear the garment (dangerous) or keep it hidden even on the warmest of summer days.
I've had primary LE of the left leg for 45 years. I hid my LE garment for over 12 years, too uncomfortable to wear it in public. Then one summer day in 1980 I said to heck with what others think, I'm wearing shorts because I'm hot (no, not "that" hot! Sheesh!). I've worn shorts for every outdoor spring, summer and fall activity (hiking, cycling) ever since, showing off my garment, my big fat leg and my normal-looking muscled right leg. I got accustomed to the special looks and the questions. But most often there were no questions and no looks (that I could see).
So what's my point? My point is that I'm realizing that uncomfortableness you all feel about wearing your garment in public is still there with me even after all these years of wearing a garment in public. Because now, you see, the LE has progressed into my once "good" right leg. Now I'm having to wear a thigh high Juzo on the right leg all the time to control the new LE. Yup. Sucks. And so what am I doing about it? I'm hiding it. Wearing long pants or taking it off when I'm going in shorts. Yes: I'm unable to go to the gym with both legs in a compression garment!
Until this week when I convinced myself all over again that nobody cares, nobody is interested, nobody really will notice that both of my legs are in compression garments instead of just one. It's like that little sticky on the refrigerator that says something like dance like nobody's watching. But I must confess, it took a great deal of - something I don't know what - for me to go to yoga class on Monday night and have both legs in garments.
So I feel your pain, people. Every one of you who is uncomfortable going out in public with your arm or your leg in compression garments. Because I'm right there feeling the same thing. And I'm very uncertain if the next time I go to yoga class or go to work out in the gym I'll not strip off the thigh high before I step out there.
Silly? No. Challenging? Every day.
January 11, 2012
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Elizabeth Talucci
Thanks for the welcome. It's so wonderful to have found this site, a place to come where there are others that can truly understand what it's like to have lymphedema. I have primary lymphedema in both my right and left leg. I am still learning and adjusting although I've lived with it for years. Many of those years I didn't know what this was, or that it even had a name. It's nice to have a place that offers support, information, and advice.
July 11, 2014
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Helen Blinder
Has anyone out there had lymph transfer or venous lymph bypass surgery?
July 23, 2014
