Updates

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  Jim Boylan is now friends with margaret webb.

  • September 14, 2018
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  Jim Boylan I wonder if these will be of any use for supplemental adjustable compression.  I have found that 6 inch high laced boots help keep my ankle better compressed in addition to a Jobst brand garment, but my swelling goes up to my hip.
  A friend told me that...  moreI wonder if these will be of any use for supplemental adjustable compression.  I have found that 6 inch high laced boots help keep my ankle better compressed in addition to a Jobst brand garment, but my swelling goes up to my hip.
  A friend told me that there are two makers of thigh high leather laced boots, Whites Boots, and Wesco boots. They are 100% custom made.  

  • January 11, 2013

  • margaret webb likes this.
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    Deleted Member Hi Jim....I have been living life with my lower extremity Lymphedema for 2 years now AND I am aware I am not a Doctor BUT if you need to JIM-ify your lymphedema life so you can get thru a day easier and it works for you then go for it and...  moreHi Jim....I have been living life with my lower extremity Lymphedema for 2 years now AND I am aware I am not a Doctor BUT if you need to JIM-ify your lymphedema life so you can get thru a day easier and it works for you then go for it and congratulations.....I have had all the suggestions that I cannot wear compression garments 24/7 that I need non...    

    • January 11, 2013
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    margaret webb Thanks. I might give them ( boots) a try.

    • September 15, 2018
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  Jim Boylan Warning about errors with garment orders
  
  My specialist ordered and I paid for a Jobst 5 toe seamless toe cap through Comfort & Care.  Jobst manufactured a 4 toe seamless toe cap with a large unhemmed cutout for the little toe, which is unsuitable for...  moreWarning about errors with garment orders
  
  My specialist ordered and I paid for a Jobst 5 toe seamless toe cap through Comfort & Care.  Jobst manufactured a 4 toe seamless toe cap with a large unhemmed cutout for the little toe, which is unsuitable for my foot.  My therapist complained about the error and was told that Jobst won't make a 5 toe seamless toe cap, 4 toes is their maximum.  They said a credit for the original order would be issued if she reordered and I paid for the new order.  So she ordered a 5 toe version with a seam, but changed some of the measurements because of the different construction.  Jobst refused to issue a credit because of the changes, even though they won't make what was originally ordered.  They claim that any changes relieve them (and all manufacturers) of any responsibility for errors fulfilling original orders.
  Moral:  Be very careful when trying to get manufacturers' errors corrected.
  James F. Boylan  less

  • August 9, 2012

  • ed cruz likes this.
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    Staff Certified Lymphedema Therapist Ordering garments can be quite complicated. Why could you not order a seamed 5 toe cap? Maybe your therapist should get in touch with her local rep for Jobst. They can be very helpful when there are order complications. Good luck!

    • August 10, 2012
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    Jim Boylan She (my therapist) could order a seamed 5 toe cap, which she finally had to do. Originally, she specified a seamless 5 toe cap, but Jobst sent a seamless 4 toe cap with the excuse that they don't make seamless 5 toe caps.

    • August 10, 2012
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    Jim Boylan My therapist got the president of Comfort & Care to argue my case with Jobst. I haven't heard any more.

    • October 6, 2012
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  Jim Boylan Wrapping Standards
  How are the standards for wrapping swollen limbs made?  Is there any provision for public or patient input and comment about future revisions?

  • May 15, 2012
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  Jim Boylan Is there anyone in this Group who is a researcher into causes and cures of Lymphedema, and possible differences between various patients?

  • May 8, 2012

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    Ron Walker Jim, check your messages above....

    • May 9, 2012
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    Jim Boylan My swelling started suddenly at age 53 over about 3 weeks in April and May, 2004, between the left knee and toes, exclusive. ...  

    • May 12, 2012
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  Ron Walker is now friends with Jim Boylan.

  • May 6, 2012
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  Jim Boylan → Ron Walker: I went to Pay Less Shoes, a chain, and found size 14 slippers with 2
  hook and loop fastener straps at about US$24.95.  Department stores had the
  same brand at a discount, but only up to size 12.  Size 16 might have let me
  get both straps fastened,...  moreI went to Pay Less Shoes, a chain, and found size 14 slippers with 2
  hook and loop fastener straps at about US$24.95.  Department stores had the
  same brand at a discount, but only up to size 12.  Size 16 might have let me
  get both straps fastened, instead of just 1.
  
  Some men's trousers made of less expensive synthetic cloth have some stretch in
  
  them, so they cling to the wrapping, but aren't too loose on the other leg.  Could
  
  you get away with wearing sportsmen's tights or sweat pants?
  
  I would like to compare our experiences.  less

  • May 4, 2012

  • Staff Certified Lymphedema Therapist likes this.
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    Ron Walker Actually, its been a week of wearing shorts and one velcro sandle, not to bad as everyone understands, so far. I found some shorts mfg. by Dickies, they have a "loose fit" size which has more room in the seat and legs, also come in a 13" inseam which...  moreActually, its been a week of wearing shorts and one velcro sandle, not to bad as everyone understands, so far. I found some shorts mfg. by Dickies, they have a "loose fit" size which has more room in the seat and legs, also come in a 13" inseam which covers most of the wrap. They are pretty bagging with lots of room. Still working on the shoes though.
    
    Thsnks for your reply.
    RonW.  

    • May 5, 2012
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  Jim Boylan From a new member:
  Is there anyone else here who is male with no breasts removed or any cancer or known injuries, but with just 1 swollen leg at age 53?  I'm sorry if I have intruded on a female Group.
  
  Thanks,
  Jim

  • May 3, 2012

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    Lymphedema Community Staff Hello Jim,
    
    This community is for everyone - men and women alike. You have come to the right place. Please feel welcome. This site has many male members.

    • May 3, 2012
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    Ron Walker I'm male, 55 with a swole leg.....LOL!

    • May 3, 2012
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  Jim Boylan has just joined the community. Say hello!

  • April 27, 2012

  • 
    Lymphedema Community Staff Welcome!

    • April 27, 2012
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