Judy Tallant → BRYAN WAYNE: I discussed it with my surgeon in follow ups. I'm no sure it was anything they did, that could be considered faulty or negligent. I've always had poor circulation. It appeared in the form of a stasis on the shin, below the incision, on day 3 - both... moreI discussed it with my surgeon in follow ups. I'm no sure it was anything they did, that could be considered faulty or negligent. I've always had poor circulation. It appeared in the form of a stasis on the shin, below the incision, on day 3 - both times. I was moved to Skilled Nursing from the hospital, and stayed 3 weeks with the freestone, 5 weeks with the 2nd one. They documented it when checking me in - performing a brief exam that included checking incisions and for any open skin. I had never had a stasis like that before. My initial thought was that it was cellulitis - which I had had a couple times in the past. less
June 1, 2016
Judy TallantAnd welcome - Iam just finally getting into support groups after going it practically alone with very little support for 2-1/2 years. I feel less isolated, more connected - and more hopeful, getting information about ways to manage it I had no clue... moreAnd welcome - Iam just finally getting into support groups after going it practically alone with very little support for 2-1/2 years. I feel less isolated, more connected - and more hopeful, getting information about ways to manage it I had no clue about. This group also gave me a list of practitioners I am using.
BRYAN WAYNEITS JUST THAT WHEN I WENT IN THE OPERATING ROOM THAT DAY I DID NOT HAVE IT..CUZ I KNOW THAT THEY DID SLICE THRU THE LYMPHATIC SYSTEM TO BE ABLE TO REPAIR THE KNEE,,SOUNDS LIKE WERE ALL IN THE SAME BOAT.IM GLAD WE ALL CAN TALK TO EVERYONE ,BECAUSE MY... moreITS JUST THAT WHEN I WENT IN THE OPERATING ROOM THAT DAY I DID NOT HAVE IT..CUZ I KNOW THAT THEY DID SLICE THRU THE LYMPHATIC SYSTEM TO BE ABLE TO REPAIR THE KNEE,,SOUNDS LIKE WERE ALL IN THE SAME BOAT.IM GLAD WE ALL CAN TALK TO EVERYONE ,BECAUSE MY SUPPORT ISENT RESPONDING NEITHER
Judy TallantOh sure, it undoubtedly happened in surgery - but Not due to negligence, in my opinion. Maybe he cut into something he shouldn't have, and maybe it's just from tissue trauma and my crummy circulation - I don't know and I don't know that he can answer it... moreOh sure, it undoubtedly happened in surgery - but Not due to negligence, in my opinion. Maybe he cut into something he shouldn't have, and maybe it's just from tissue trauma and my crummy circulation - I don't know and I don't know that he can answer it either. Remember, understanding the lymph system isn't high on the radar of most in the medical field.
There are some good Facebook support groups, and I recently joined a really great one called Lymph Strong Inspiration Group - where I found a huge community of other like you and me - and people living with it and managing it for several years. I'm... less
BRYAN WAYNE: HI JUDY IM BRYAN NEW HERE.I READ YOUR NOTE AND WAS WONDERING DID THE HOSPITAL ACKNOLAGE THAT YOU GOT IT FROM SURGERY.CUZ I JUST CAME DOWN WITH IT .MY SURGERY WAS FEB 17 2015 TOTAL KNEE
June 1, 2016
Judy TallantI developed LE from the knee down, after each of my total knee replacement surgeries, 3-months apart, in 2013-2014. I live in Washington state - recently migrating to the southeastern part for a temporary project, after years of living a bit northeast of... moreI developed LE from the knee down, after each of my total knee replacement surgeries, 3-months apart, in 2013-2014. I live in Washington state - recently migrating to the southeastern part for a temporary project, after years of living a bit northeast of Seattle. I am looking forward to learning, and generally feeling less isolated and alone. I'm in a transitory position in my life and will be settling after this project ends, in a location yet unknown. My first criteria is great LE medical access.
Even in communities with good programs, there's no central place where they are all listed. If I'm looking for a new location to call home, anyone have knowledge of great services anywhere in the state? Or even outside of the state - I can really go anywhere I want. My 2nd criteria is lower cost of living so Seattle probably not my goal. less
May 24, 2016
Staff Certified Lymphedema Therapist
HI Judy! Here is the link for finding a therapist in your area through the Norton School website. http://www.nortonschool.com/therapistreferrals_form.html
Judy TallantSadly, of all the names on the big list I got, all but two work for a hospital and clinic system that don't accept my insurance. Of the other two, one is an independent but also doesn't accept my insurance. The other just retired. Woo hoo - yay me! Not... moreSadly, of all the names on the big list I got, all but two work for a hospital and clinic system that don't accept my insurance. Of the other two, one is an independent but also doesn't accept my insurance. The other just retired. Woo hoo - yay me! Not feeling terribly encouraged at the moment.
And so much for the ACA that REQUIRES everyone to buy insurance - yet those of us paying out of pocket are 2nd class patients to most specialties.
Judy Tallant
Checking the NLN - there's only two listings - and they don't include any of the Norton School graduates in the zip codes I used. So much for finding practitioners - they don't seem to want to make it easy to find them.
kim guesno
I HOPE EVERYONE IS HAVING A WONDERFUL DAY
BRYAN WAYNE
DOES ANYONE ON HERE KNOW OF ANY LYMPHEDEMA SPECIALIST IN THE VACAVILLE/SAC/DAVIS AREA OR LYMPTHATIC MASSAGE THERAPIST..,MY HEALTH PROVIDER DOSENT SEEM TO KNOW NOTHING WHICH IS KAISER...
