• Sign In
  • Sign Up
    Loading ...
View All Updates Mark All Read
Lymphedema Community - Support and Information for Lymphedema Patients
  • Home
  • Members
  • Albums
  • Blogs
    • Browse Entries
  • Chat
  • Events
    • Upcoming Events
    • Past Events
  • Groups
    • Browse Groups
  • Updates
  • Info
  • Friends(2)

Updates

The post was not added to the feed. Please check your privacy settings.
  • kim guesno
    kim guesno: custom biker shorts flat knit they are super hot.and I got over heated the other night when I was outside.got sick.i drink a lot of h20.but by the time I new I was way to hot it was to late .I will not do that again.
    • June 4, 2016
    • kim guesno
      Deleted Member My Dearest* am Mandi i pick up interest I have something very Vital to discuss with you. Please could you get back to me directly to my private email add ress at ( mandijansen2@gmail.com). for more...  
      • October 26, 2016
      • -
      • Report
  • kim guesno
    kim guesno: o got it now.my compression is not agreeing with me today or yesterday nc summers are a bear.  this question is for anyone who lives in a HOT state in the summer what do you do when you lose power how do you keep yourself from swelling .ia sure this...  moreo got it now.my compression is not agreeing with me today or yesterday nc summers are a bear.  this question is for anyone who lives in a HOT state in the summer what do you do when you lose power how do you keep yourself from swelling .ia sure this year we are going to have HURRICANES we lose power for about a week,and we live in the sticks.  
    • June 3, 2016
    • kim guesno
      BRYAN WAYNE go to a friends house,,pre plan it..
      • June 3, 2016
      • -
      • Report
    • kim guesno
      BRYAN WAYNE what kind of compression garments do you have,,are they velcro
      • June 3, 2016
      • -
      • Report
  • kim guesno
    kim guesno: what s Kaiser perm.I take omega 6 primrose oil it keeps my shin from getting dri I went down on dose and my skin got really dri so I went back up to what I was taking I have used it foryears.
    • June 2, 2016
    • kim guesno
      BRYAN WAYNE KAISER PERMANENTE.ITS A HOSPITAL HERE IN CALIFORNIA
      • June 3, 2016
      • -
      • Report
  • Judy Tallant
    Judy Tallant is now friends with BRYAN WAYNE.
    • June 2, 2016
    • BRYAN WAYNE likes this.
  • kim guesno
    kim guesno: yes iam ok just take it day by day my husand of 32yrs is tring to understand but he has his own issus to deal with we have had a lot happen  in the last 2 yrs.medical things.yep I no about the cats.i also have 3 dogs and 9 chickens I guess we have a...  moreyes iam ok just take it day by day my husand of 32yrs is tring to understand but he has his own issus to deal with we have had a lot happen  in the last 2 yrs.medical things.yep I no about the cats.i also have 3 dogs and 9 chickens I guess we have a mini farm but they make us happy and puts our mines in other places.  
    • June 2, 2016
    • BRYAN WAYNE likes this.
  • kim guesno
    kim guesno: The doc and Pts are the same way I get more information online.I no this has costed us a lot of money
    • June 2, 2016
    • BRYAN WAYNE likes this.
  • BRYAN WAYNE
    BRYAN WAYNE DOES ANYONE ON HERE KNOW OF ANY LYMPHEDEMA SPECIALIST IN THE VACAVILLE/SAC/DAVIS AREA OR LYMPTHATIC MASSAGE THERAPIST..,MY HEALTH PROVIDER DOSENT SEEM TO KNOW NOTHING WHICH IS KAISER...
    • June 2, 2016
    • BRYAN WAYNE
      Staff Certified Lymphedema Therapist http://www.nortonschool.com/therapistreferrals_form.html
      Bryan, you can do a therapist search here on the Norton School website.
      • June 9, 2016
      • -
      • 1 likes this
      • -
      • Report
  • BRYAN WAYNE
    BRYAN WAYNE → kim guesno: IVE USED SO MUCH LOTION  ON MY FEET ,I GUESS THEY REALLY STRESS CLEAN FEET WITH WHICH I HAVE,BUT NOW EVEN MORE SO
    • June 1, 2016
  • BRYAN WAYNE
    BRYAN WAYNE → kim guesno: FROM WHAT IM SEEING AT HOSPITALS I THIMK WE ALL KNOW MORE THAN THEY DO..WISH I HAD THERE $ THOUGH..I LIVE IN VACAVILLE CALIFORNIA
    • June 1, 2016
  • BRYAN WAYNE
    BRYAN WAYNE is now friends with kim guesno.
    • June 1, 2016
  • BRYAN WAYNE
    BRYAN WAYNE → kim guesno: HELLO KIM,YEAH THIS WHOLE SITUATIO THE LAST 5 MONTHS HAS BEEN SO CONFUSING ,I CANNOT BELEIVE HOW KAISER PERM DOSENT KNOW OR HAVE ANY STAFF ON DUTY,,ITS LIKE TALKING TO A WALL .HAVE YOU BEEN BEING TREATED LIKE    ( HUH WHAT) WHEN YOU ASK A MEDICAL DOC...  moreHELLO KIM,YEAH THIS WHOLE SITUATIO THE LAST 5 MONTHS HAS BEEN SO CONFUSING ,I CANNOT BELEIVE HOW KAISER PERM DOSENT KNOW OR HAVE ANY STAFF ON DUTY,,ITS LIKE TALKING TO A WALL .HAVE YOU BEEN BEING TREATED LIKE    ( HUH WHAT) WHEN YOU ASK A MEDICAL DOC ABOUT THIS DISEASE,AND HE/SHE JUST STAIR AT THE WALL..   
    • June 1, 2016
  • kim guesno
    kim guesno: I am new here also still trying to figure out how to use this site this is the first time iam have joined a group online.
    • June 1, 2016
    • BRYAN WAYNE likes this.
  • Judy Tallant
    Judy Tallant: I discussed it with my surgeon in follow ups. I'm no sure it was anything they did, that could be considered faulty or negligent. I've always had poor circulation. It appeared in the form of a stasis on the shin, below the incision, on day 3 - both...  moreI discussed it with my surgeon in follow ups. I'm no sure it was anything they did, that could be considered faulty or negligent. I've always had poor circulation. It appeared in the form of a stasis on the shin, below the incision, on day 3 - both times. I was moved to Skilled Nursing from the hospital, and stayed 3 weeks with the freestone, 5 weeks with the 2nd one. They documented it when checking me in - performing a brief exam that included checking incisions and for any open skin. I had never had a stasis like that before. My initial thought was that it was cellulitis - which I had had a couple times in the past.  less
    • June 1, 2016
    • Judy Tallant
      Judy Tallant And welcome - Iam just finally getting into support groups after going it practically alone with very little support for 2-1/2 years. I feel less isolated, more connected - and more hopeful, getting information about ways to manage it I had no clue...  moreAnd welcome - Iam just finally getting into support groups after going it practically alone with very little support for 2-1/2 years. I feel less isolated, more connected - and more hopeful, getting information about ways to manage it I had no clue about. This group also gave me a list of practitioners I am using.  
      • June 1, 2016
      • -
      • 1 likes this
      • -
      • Report
    • Judy Tallant
      BRYAN WAYNE ITS JUST THAT WHEN I WENT IN THE OPERATING ROOM THAT DAY I DID NOT HAVE IT..CUZ I KNOW THAT THEY DID SLICE THRU THE LYMPHATIC SYSTEM TO BE ABLE TO REPAIR THE KNEE,,SOUNDS LIKE WERE ALL IN THE SAME BOAT.IM GLAD WE ALL CAN TALK TO EVERYONE ,BECAUSE MY...  moreITS JUST THAT WHEN I WENT IN THE OPERATING ROOM THAT DAY I DID NOT HAVE IT..CUZ I KNOW THAT THEY DID SLICE THRU THE LYMPHATIC SYSTEM TO BE ABLE TO REPAIR THE KNEE,,SOUNDS LIKE WERE ALL IN THE SAME BOAT.IM GLAD WE ALL CAN TALK TO EVERYONE ,BECAUSE MY SUPPORT ISENT RESPONDING NEITHER  
      • June 2, 2016
      • -
      • Report
    • Judy Tallant
      Judy Tallant Oh sure, it undoubtedly happened in surgery - but Not due to negligence, in my opinion. Maybe he cut into something he shouldn't have, and maybe it's just from tissue trauma and my crummy circulation - I don't know and I don't know that he can answer it...  moreOh sure, it undoubtedly happened in surgery - but Not due to negligence, in my opinion. Maybe he cut into something he shouldn't have, and maybe it's just from tissue trauma and my crummy circulation - I don't know and I don't know that he can answer it either. Remember, understanding the lymph system isn't high on the radar of most in the medical field.

      There are some good Facebook support groups, and I recently joined a really great one called Lymph Strong Inspiration Group - where I found a huge community of other like you and me - and people living with it and managing it for several years. I'm...    less
      • June 2, 2016
      • -
      • 1 likes this
      • -
      • Report
  • BRYAN WAYNE
    BRYAN WAYNE → Judy Tallant: HI JUDY IM BRYAN NEW HERE.I READ YOUR NOTE AND WAS WONDERING DID THE HOSPITAL ACKNOLAGE THAT YOU GOT IT FROM SURGERY.CUZ I JUST CAME DOWN WITH IT .MY SURGERY WAS FEB 17 2015 TOTAL KNEE
    • June 1, 2016
  • BRYAN WAYNE
    BRYAN WAYNE IM NEW HERE
    • June 1, 2016
  • BRYAN WAYNE
    BRYAN WAYNE I WOULD LIKE TO KNOW THE ANSWER TO KIRANS QUESTION ALSO
    • June 1, 2016
  • BRYAN WAYNE
    BRYAN WAYNE has just joined the community. Say hello!
    • May 30, 2016
    • BRYAN WAYNE
      Lymphedema Community Staff Welcome!
      • May 30, 2016
      • -
      • 1 likes this
      • -
      • Report
View More
Loading ...

Info

  • Classification Patient
  • Gender Male
  • Birthday April 30, 1962
  • Employer RETIRED
  • Last Name WAYNE
  • First Name BRYAN

Friends

  • kim guesno I HOPE EVERYONE IS HAVING A WONDERFUL DAY
  • Judy Tallant I developed LE from the knee down, after each of my total knee replacement surgeries, 3-months apart, in 2013-2014. I live in Washington state - recently migrating to the southeastern part for a temporary project, after years of living a bit northeast of Seattle. I am looking forward to learning, and generally feeling less isolated and alone. I'm in a transitory position in my life and will be settling after this project ends, in a location yet unknown. My first criteria is great LE medical access. Even in communities with good programs, there's no central place where they are all listed. If I'm looking for a new location to call home, anyone have knowledge of great services anywhere in the state? Or even outside of the state - I can really go anywhere I want. My 2nd criteria is lower cost of living so Seattle probably not my goal.
Previous
Next
©2009-2017 Lymphedema Community - A Division of the Norton School of Lymphatic Therapy  -  Privacy  -  Terms of Service  -  Contact