Updates
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Amy Gensmer → Cade Flin..: How can I find a doctor to help me? I thought I found one. She was considered a lymphedema specialist. She told she was going to do a lymphsintography (sp) test. She never came through. I called, I emailed. She would say she was putting the... moreHow can I find a doctor to help me? I thought I found one. She was considered a lymphedema specialist. She told she was going to do a lymphsintography (sp) test. She never came through. I called, I emailed. She would say she was putting the orders in and NOTHING! I am so frustrated. My GP doesn't understand at all. I have no idea where to look now. I would travel if needed. So far the only thing I have had done medically is an ultra sound of my lymph node. I have asked for LDM and that has been OK. I fear the leg wrap has caused painful scar tissue in my hip and thigh. (The wrap stopped short of my thigh and the fluid was stuck there. Sorry for gushing. Just getting desperate for help. less
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Amy Gensmer It has been a long year. lymphedema in my right leg came into my life after the birth of my daughter via c-section. It has gradually gotten worse this past year. The odd thing is I have two swollen lymph nodes in my groin. The first lymph node... moreIt has been a long year. lymphedema in my right leg came into my life after the birth of my daughter via c-section. It has gradually gotten worse this past year. The odd thing is I have two swollen lymph nodes in my groin. The first lymph node did not seem to come with too much swelling but when the second showed up the swelling took off and has caused painful scar tissue in my hip. My GP was at a loss as to how to help. I did my research and started Lymph message therapy. It has helped but caused areas of scar tissue in my upper thigh and hip . Now I have started to focus on the nodes. I am currently having acupuncture treatments with the hope of reducing and healing the lymph nodes. My hope is that the lymphedema will go away as a result. My first session was amazing. The nodes visibly shrunk and the swelling went down as well. At night I feel my right leg swelling slightly. My hip is still painful from the scar tissue. I am encouraged so far and will continue. I am hoping to find someone with the same lymphedema story, or encouragement that I am heading in the right direction. less
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Info
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Classification
Patient
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Gender
Female
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Birthday
November 4, 1972
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Last Name
Gensmer
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First Name
Amy
