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Amy Gensmer: How can I find a doctor to help me? I thought I found one. She was considered a lymphedema specialist. She told she was going to do a lymphsintography (sp) test. She never came through. I called, I emailed. She would say she was putting the... moreHow can I find a doctor to help me? I thought I found one. She was considered a lymphedema specialist. She told she was going to do a lymphsintography (sp) test. She never came through. I called, I emailed. She would say she was putting the orders in and NOTHING! I am so frustrated. My GP doesn't understand at all. I have no idea where to look now. I would travel if needed. So far the only thing I have had done medically is an ultra sound of my lymph node. I have asked for LDM and that has been OK. I fear the leg wrap has caused painful scar tissue in my hip and thigh. (The wrap stopped short of my thigh and the fluid was stuck there. Sorry for gushing. Just getting desperate for help. less
January 31, 2017
Carrie Cummins: Thank you very much for this update and information. I've been a researching fool since this happened. Mine is secondary, and started this past summer after surgery in my groin area. It was almost immediate, but the surgeon told me it was just edema from... moreThank you very much for this update and information. I've been a researching fool since this happened. Mine is secondary, and started this past summer after surgery in my groin area. It was almost immediate, but the surgeon told me it was just edema from being ill and that it was uncomfortable, but I should just live with it.
I fear my GP doesn't knew much about this, and didn't know what kind of doctor I should see to help manage it.
Again, than you for your help and research.
I have had lymphedema for all 25 years(so far) that I have been on this earth. There is an astonishing amount of misinformation and lack of information available for patients and professionals, so I thought I would share my experience. If you can add to t...
Lymphedema Community Staff
"Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow."
~ Mary Anne Radmacher
