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  margaret webb: I am a few days late but Happy Birthday. I hope you had fun!!!!

  • September 29, 2018

  • Jo Scarborough likes this.
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  Jo Scarborough is now friends with linda e.

  • September 12, 2018

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    Jo Scarborough Hello Linda, I am a new member and need all the support I can get...I had to go up 2 sizes in shoes so I can wear while my feet and ankles are wrapped, they look huge so I wear longer pants to hide the shoes...what we have to go through!!!

    • September 12, 2018
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  Jo Scarborough → Barbara Landsman: Hello Barbara and thanks for sending me a friend request and I'm glad to know there is a community out there for Lymphedema patients to share our stories and knowledge...My lymphedema did not come about from breast cancer or any cancer surgeries, I don't...  moreHello Barbara and thanks for sending me a friend request and I'm glad to know there is a community out there for Lymphedema patients to share our stories and knowledge...My lymphedema did not come about from breast cancer or any cancer surgeries, I don't understand how I got it but I am overweight, I have heard that it does help to lose weight but I don't think that's all of it... I also heard it can be caused from other surgeries I had in the past, such as knee surgeries, I'm not really sure what caused it but I have it and makes me depressed to see my feet and ankles swell up so I can't wear my normal size shoes anymore. I have done the lymph wrappings and that helps reduce swelling after being wrapped up for 2-3 days but how can the swelling completely go away? I wan't to find a nearby lymphatic massage therapist too that has studied this extensively and is very knowledgeable but have had no luck so far, only found 2 that are not certified that tried their best but didn't help. I too get tired of dealing with lymp and don't do anything and then the swelling gets bad...can't get away with it.  less

  • September 12, 2018

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    margaret webb My doctor has no ideal how I got this either. I had a blood clot six months before. Again my doctor could not fiqure out how I got that.

    • September 12, 2018
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  Jo Scarborough is now friends with Barbara Landsman.

  • September 12, 2018
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  Jo Scarborough → Donna Bailey: Hello Donna, I have had lymphedema for close to 3 years noe and I have been looking for a certified lymphatic massage therapist nearest to me in these cities: Independence MO. or Blue Springs, MO. or Lees Summit, MO. area...and if there are any in the...  moreHello Donna, I have had lymphedema for close to 3 years noe and I have been looking for a certified lymphatic massage therapist nearest to me in these cities: Independence MO. or Blue Springs, MO. or Lees Summit, MO. area...and if there are any in the Kansas City MO. area nearest to those cities. Are there hospitals that has licensed therapist for lymphatic drainage massage? All the ones I have found so far are not certified, it is getting difficult to find one close to where I live. I'm hoping you might have some information seeing you are a certified lymphatic therapist yourself. thanks! Jo  less

  • September 12, 2018
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  Jo Scarborough yes Margaret, I understand what you mean about it being rough at times having lymphedema and I too find it difficult to know it's something I will always have to deal with since it's not curable but there is hope it can be controlled so it don't get...  moreyes Margaret, I understand what you mean about it being rough at times having lymphedema and I too find it difficult to know it's something I will always have to deal with since it's not curable but there is hope it can be controlled so it don't get worse with several methods of treatments. 1. wrapping your legs, the swelling might not go away entirely but it does go down with the lymphedema wrappings treatment 2. the lymphatic drainage massage, a special light touch massage that gets the lymph fluids to flow properly 3, certain lymphatic exercise, and I was told that losing weight could help and water exercise is great way since no pressure on your joints and the water tends to have a compression against your legs... Have you heard of any of those treatments or tried any and are both your legs effected and swollen? I was hoping to find a certified lymphatic massage therapist in my area that is reasonably close to where I live so I can do that along with wrappings and then try a local indoor swimming pool that offers water exercise classes..that's my goal.  less

  • September 12, 2018
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  Jo Scarborough → margaret webb: Hello Margaret, can I ask what shots have you had done to your legs and did it help any and what treatments have you had done for your Lymphedema so far?

  • September 10, 2018

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    margaret webb I was told the blood was flowing the wrong way in my viens so they tried to correct that. I am not sure what were in the shots. I had a blood...  

    • September 11, 2018
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  Jo Scarborough is now friends with margaret webb.

  • September 10, 2018
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  Jo Scarborough → Lymphedema Community Staff: Hello and thank you for welcoming me to the Lymphedema Community here online. Here is my story: In 2015 I starting noticing my ankles and feet swelling and eventually couldn't fit into any of my shoes anymore, at which point I went to my primary Dr. who...  moreHello and thank you for welcoming me to the Lymphedema Community here online. Here is my story: In 2015 I starting noticing my ankles and feet swelling and eventually couldn't fit into any of my shoes anymore, at which point I went to my primary Dr. who was not familiar with what exactly was causing this swelling but who thought it could be caused by damaged veins, so I was sent to a skin and vein Dr. who treated me for vein damage of my legs with laser treatments but after treating the damaged veins, my ankles and feet remained swollen, so he then diagnosed me with Lymphadema and suggested several things to do, losing weight, wearing compression stockings and getting lymphedema massages and therapy. I need to find a certified therapist and feel I really need to start getting the correct Lymphatic drainage massage for me and any other treatment that can help me, also I heard water exercise is a good way to keep it under control, is that right? Thanks
  Jo  less

  • September 6, 2018
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  Jo Scarborough has just joined the community. Say hello!

  • September 5, 2018

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    Lymphedema Community Staff Welcome!

    • September 6, 2018
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