Steve Norton: Hi Etta, I wanted to comment as a Certified Lymphedema Therapist and Instructor of lymphedema Therapy. If elevation is the only advice you've yet received there is a much more comprehensive evaluation that must be performed. You should not have to suffer... moreHi Etta, I wanted to comment as a Certified Lymphedema Therapist and Instructor of lymphedema Therapy. If elevation is the only advice you've yet received there is a much more comprehensive evaluation that must be performed. You should not have to suffer with this newly diagnosed lymphedema. it only been a year since your operation which makes your swelling quite treatable. I would like to ask you to seek a Certified Therapist (135 hours of training). If you are open I can direct you to resources. I hope to hear back from you and wish you well. Steve Norton (Lymphedema Community Founder) less
June 10, 2011
Etta [ Niecey] GardThanks for answering,i feel helpless and hopeless as a minor surgery turned into,cellulitius, mrsa and now lymphedema and the only shoes i can wear are flops or crocs and pretty shoes were my weakness before. I went to a lymphedema therapist for a few... moreThanks for answering,i feel helpless and hopeless as a minor surgery turned into,cellulitius, mrsa and now lymphedema and the only shoes i can wear are flops or crocs and pretty shoes were my weakness before. I went to a lymphedema therapist for a few months and they wrapped me very well but it never helped and was sent to a neuorlogist and he said when the pain goes away my leg will be numb and i will fall plus i cannot get outside as he told me no bug bites so i wear long slacks and socks outside!!Sorry this is so long but i am new and do not know much about this but i am... less
Steve NortonWell it seems you've had some therapy but i wonder why the wrapping didn't work. it always does if the therapist knows what materials and techniques to use. i can imagine you're feeling quite alone so certainly a support group and even discussions here... moreWell it seems you've had some therapy but i wonder why the wrapping didn't work. it always does if the therapist knows what materials and techniques to use. i can imagine you're feeling quite alone so certainly a support group and even discussions here can be very helpful. There are special stockings that kill bacteria (silver) and exercise is important in the stockings to pump the fluid. You can also use repellants if necessary. I would not recommend staying cooped up in side. Its very depressing and demotivating to say the least. You should also always have a current... less
Steve Norton: Hi Etta, I have two phone numbers for you in Kentucky which are listed in the National Lymphedema Networks Newsletter. One support group is in Ft. Thomas (859-301-2273, or 859-441-6484) and in Louisville (502-899-9363 or 5020459-0570). Bests, Steve Norton
June 10, 2011
Etta [ Niecey] Gard
Thanks for the information, i wrote down the numbers for Ky.
Etta [ Niecey] Gard → Lori Mifsud: Hello Lori and welcome, i hope you enjoy the community as i just joined but so far i have not gotten feedback on where to meet in Ky. I know people with this problem need to help one another!! I will listen to you anytime. Niecey
Etta [ Niecey] Gard → John Gross: John i purchased croc shoes and they work wonders for me as there are no shoes i can buy to fit my feet, i wear 8's but bought 9's and padded the other tennis shoe but i found out croc's did it better than anything else plus they only cost about 25.00... moreJohn i purchased croc shoes and they work wonders for me as there are no shoes i can buy to fit my feet, i wear 8's but bought 9's and padded the other tennis shoe but i found out croc's did it better than anything else plus they only cost about 25.00 and they are great for me.ps. there are off brands other than croc brands also that might work as well for you
May 24, 2011
Etta [ Niecey] GardHello, i just wanted to talk to some who has lymphedema from that came from surgery after having a tumor removed from just below my knee. I have given all my pretty slippers,sandals,shoes & boots as all i can wear is crocs & flip flops which has... moreHello, i just wanted to talk to some who has lymphedema from that came from surgery after having a tumor removed from just below my knee. I have given all my pretty slippers,sandals,shoes & boots as all i can wear is crocs & flip flops which has depressed me ever so much and yes i know i could not have feet which would be worse but right now i need to talk to someone who understands my feelings......Thanks for letting me air my toubles to who ever is listening, oh yes i had this surgery 6-21-10 and they still tell me to keep my leg elevated as much as possible!!! less
![Etta [ Niecey] Gard](/public/user/19/07/0712_726b.JPG)
