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  • Leeney (Ilene) Greenwell
    Leeney (Ilene) Greenwell is now friends with Michele E..
    • June 3, 2011
    • Michele E. likes this.
    • Leeney (Ilene) Greenwell
      Michele E. Woo-hoo!
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Leeney (Ilene) Greenwell I am a newbie at all this...and yes, I understand on the lymphedema therapist...didn't know we were going to become great friends and see each other on a regular basis.
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Michele E. Me too dear :-), but it's so good to know that you're not alone :-)
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Leeney (Ilene) Greenwell Good to know! I am learning - trying to stay positive. Just a little speed bump in the road of life. Still in the processing stages. Thanks for welcoming me!
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Michele E. GUUURRRLLL, I almost fell out this weekend when my leg blew up again, but like my pedicurist said - YOU CAN'T GIVE UP. Not allowed. Kk!! It's not allowed. I had to look at my setback as not sleeping with bandages for two days and it was great, but we...  moreGUUURRRLLL, I almost fell out this weekend when my leg blew up again, but like my pedicurist said - YOU CAN'T GIVE UP. Not allowed. Kk!! It's not allowed. I had to look at my setback as not sleeping with bandages for two days and it was great, but we need to take care of ourselves. I am one of the few that has lymphedema in all of my limbs.  
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Leeney (Ilene) Greenwell Not giving up!!! Sorry girl. I have it my legs...Too much today and home. Heat and wrapping are hot! I need to milk my legs in the press....and I started a blog!!! If you have any pointers or words of wisdom, I am eager to hear them!!!!
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Michele E. You are not alone. I understand. :-) I sweat putting on my "stuff". You'd think I'd be skinny minnie by now!
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Leeney (Ilene) Greenwell Feel better already. It is a great way to exit a bbq early. I think I am "hot" mummy wrapped...and yes...my legs have gone down inches already - I told my therapist I had best drop sizes! I am tired....from sitting in the press 2 hours a day, to...  moreFeel better already. It is a great way to exit a bbq early. I think I am "hot" mummy wrapped...and yes...my legs have gone down inches already - I told my therapist I had best drop sizes! I am tired....from sitting in the press 2 hours a day, to washing garments, to fighting to get them on...there has to be calories burned in all that activity!  
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Michele E. I know, I know. There's a book that I picked up dealing with the emotions that lymphedema patients go through. I left it home, but will send you the name of it. I think the author is Elizabeth McMahon. What state do you live in? I am in NY.
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Leeney (Ilene) Greenwell So we do deal with emotions? If I hear someone else say "it is what it is".....to which I say yes, but it isn't your "what is." Going to wrap them for a day and then we can discuss. I am in Missouri. Would appreciate the book name!
      • June 3, 2011
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    • Leeney (Ilene) Greenwell
      Michele E. Whew - you go gurl! I have to message you this weekend on the site as my smart phone is a mess and I cannot post messages. Have a beautiful rest of the day as you are a beautiful person all of the time!
      • June 3, 2011
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Info

  • Classification Patient
  • Gender Female
  • Birthday February 14, 1976
  • Last Name E.
  • First Name Michele

Friends

  • Jim Miller (sorry for the long post but I couldn't stop) About those compression garments we wear...I know personally how we all are sensitive to wearing our garments in public. Many posts and emails and other blogs are filled with comments about people unwilling to wear their garments "out" in public. Yup, it absolutely does set us apart as "special", that's for sure. So we  either don't wear the garment (dangerous) or keep it hidden even on the warmest of summer days.  I've had primary LE of the left leg for 45 years. I hid my LE garment for over 12 years, too uncomfortable to wear it in public. Then one summer day in 1980 I said to heck with what others think, I'm wearing shorts because I'm hot (no, not "that" hot! Sheesh!). I've worn shorts for every outdoor spring, summer and fall activity (hiking, cycling) ever since, showing off my garment, my big fat leg and my normal-looking muscled right leg. I got accustomed to the special looks and the questions. But most often there were no questions and no looks (that I could see). So what's my point? My point is that I'm realizing that uncomfortableness you all feel about wearing your garment in public is still there with me even after all these years of wearing a garment in public. Because now, you see, the LE has progressed into my once "good" right leg. Now I'm having to wear a thigh high Juzo on the right leg all the time to control the new LE. Yup. Sucks. And so what am I doing about it? I'm hiding it. Wearing long pants or taking it off when I'm going in shorts. Yes: I'm unable to go to the gym with both legs in a compression garment!  Until this week when I convinced myself all over again that nobody cares, nobody is interested, nobody really will notice that both of my legs are in compression garments instead of just one. It's like that little sticky on the refrigerator that says something like dance like nobody's watching. But I must confess, it took a great deal of - something I don't know what - for me to go to yoga class on Monday night and have both legs in garments.  So I feel your pain, people. Every one of you who is uncomfortable going out in public with your arm or your leg in compression garments. Because I'm right there feeling the same thing. And I'm very uncertain if the next time I go to yoga class or go to work out in the gym I'll not strip off the thigh high before I step out there. Silly? No. Challenging? Every day.
  • cosmina cocan I've written , but nobody put me in mind . Expect some feedbacks !!!!!!!!!!!!!!!!!!!!!!!!!!!!1
  • donna brown Hi!  I haven't been on for a while. I want to ask a question about surgery.  I have lymphedema in my right leg and left leg calf.  I fell and tore my rotator cuff and am getting  surgery on Feb 2nd.  Does anyone know if by getting surgery on my shoulder, do I run the risk of getting lyphedema in my arm?  The lymphedema is in my legs,but will surgery opoen up the chance of getting it in my arm?  I'm worried about that happening.  Anyone have any info with this question? I'd appreciate any help.
  • Ellie Brummett
  • Sandra Morris
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Blogs

  • Had To Say It

    Posted June 17, 2011

    Two blogs in a week!  I can't stop......   In my most recent blog, I shared about the feelings of ...

  • Dating with lymphedema - 2

    Posted June 15, 2011

    Dating is tough when you’ve had so many bad experiences and poor self image because no one understood yo...

  • Dating and Lymphedema

    Posted June 10, 2011

    The dating environment has changed dramatically from mom and dad “recommending” your mate to picki...

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