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  • Harriett Richard
    Harriett Richard → Helen Akin: Here’s an update sort of http://hwrichard.info/wp/genuine-care-giver/. #lymphadema #feelingbetternow
    • November 3, 2018
    • - edited
  • Harriett Richard
    Harriett Richard Got a spider or misquisto bite this past weekend. No fever but 3 bites on lymphedema arm and one on other arm. Fortunately-swollen lymph node, unfortunately-left arm is swollen. Using Benadryl & cortisone cream. The bite area circles are beginning to...  more
    • October 8, 2018
    • - edited
    • Harriett Richard
      margaret webb I hope you feel better very soon
    • Harriett Richard
      margaret webb Any update on the bites? I am hoping you feel better.
    • Harriett Richard
      Harriett Richard Thanks for the concern, Margaret. The dr gave me two prescriptions one antibiotic the other is a cream to rub into the bites. He said to call tomorrow if no progress. But the area is no longer warm or so itchy. The lymph node under my arm appears to be...  more
  • Allie C
    Allie C New Blog Post: #OOTD September. Pictures and links to my favorite outfits from September. xoxo-Allie
    #OOTD September
    Finding stylish and comfortable pants & shoes with lower extremity lymphedema. Always learning to love life, even when times are tough.
    • October 4, 2018
  • margaret webb
    margaret webb wrote a new blog entry:
    Angela Gamble
    Happy birthday to Angela Gamble
    • September 21, 2018
  • Brenna M.
    Brenna M. wrote a new blog entry:
    Lymphedema Treatment Options That WORK
    It’s been three years since I underwent LVA and I have a promising update to share with those interested in the procedure: it works and three years later, I’m still experiencing benefits.
    What’s LVA?
    LVA is a super micro-surgery where ...
    • August 14, 2018
    • Denise McDaniel likes this.
    • View all 6 comments
    • Brenna M.
      Brenna M. Definitely try Dr. Chen - he's done more of the surgeries in the U.S. than any other doctor - https://uihc.org/wei-f-chen
    • Brenna M.
      Harry Chait How old were you when the surgery was performed? was it covered by insurance or Medicare? Dr. Chen is in the Chicago. Do you live in Chicago?
    • Brenna M.
      Brenna M. Hi Harry, I was 31 when I had the first surgery. It was covered by insurance - although it was a process, which Dr. Chen's team was VERY helpful in navigating. Dr Chen is in Iowa, not Chicago. I don't live in Iowa or Chicago. I travelled for the surgery.
    • Brenna M.
      Amy Tramm Hi Brenna! Thank you for the encouraging post. I have gone from stage 1 to stage 2 and my oncologist has steered me away from surgical intervention for 10 years. I would love to hear an update! Did you decide to do the VLVT?
    • Brenna M.
      Brenna M. Hi Amy - happy to chat about if you want to shoot me an email. Bmello924@gmail.com Im so glad I did the surgery. It stopped my...  
  • Harriett Richard
    Harriett Richard wrote a new blog entry:
    Harriette’s blog
    This is a recent blog posting of mine. It contains 2 others on lymphedema. Hopefully, it will serve as my introduction. I’m happy to find this community.

    http://hwrichard.info/wp/live-your-best-lymph-life/
    • May 26, 2018
  • Cathy Stelzleni
    Cathy Stelzleni shared Galasso Carol's blog. Hi, I posted today about the question you are asking about. I purchased a compression machine from Amazon recently. It works as good as the one i had at PT. It paid for itself after a couple of weeks of use. It is approximately $485. Good luck.
    My wife's Lymphedema
    Hello Everyone,
    I am writing this for my wife Carol who has recently been diagnosed with Lymphedema. The condition is in her right leg from the knee down to and including the foot. The treatment that has been recommended for her is massage physical thera...
    • May 18, 2018
  • Galasso Carol
    Galasso Carol wrote a new blog entry:
    My wife's Lymphedema
    Hello Everyone,
    I am writing this for my wife Carol who has recently been diagnosed with Lymphedema. The condition is in her right leg from the knee down to and including the foot. The treatment that has been recommended for her is massage physical thera...
    • December 5, 2017
  • Cade Flin..
    Cade Flin.. wrote a new blog entry:
    Sharing 25 Years of Experience as a Lymphedema Patient
    I have had lymphedema for all 25 years(so far) that I have been on this earth. There is an astonishing amount of misinformation and lack of information available for patients and professionals, so I thought I would share my experience. If you can add to t...
    • January 25, 2017
  • Tony M
    Tony M wrote a new blog entry:
    Lymphedema and Dating
    Well I hear a lot talk about self esteem when it comes to women with lymphedema dating. I find it difficult to find a date with someone who has it though. There are guys like me that understand the disease and unlike most men admire a woman with extremely...
    • November 2, 2016
  • Donna Payne
    Donna Payne wrote a new blog entry:
    Lymphedema after knee surgery
    I had total knee replacement in May, and developed Lymphedema approx 2 months later. Is there any advice as to how to deal with this, diet, excercise, etc.? I am wearing custom compression thigh high for the affected leg.
    • October 5, 2016
  • Laura Kort
    Laura Kort shared Kathy Warwick's blog. I use Jobst Bella Light with the band at the top to keep t up. Working so far but it's only been 6-7mths.since diagnosis of lymphedema in left arm.
    Armsleeves
    I have Lymphedema in one arm brought on recently by a mastectomy 15 years ago.  I am struggling to find the most effective armsleeve and am currently looking at the Jobst Bella Strong and Jobst Bella Lite. Does anyone have any experiences with one or...
    • June 16, 2016
  • Lori Fuller
    Lori Fuller wrote a new blog entry:
    Declined by Insurance for LVA
    My sister and I both are candidates for LVA surgery with Dr. Chen in IowaCity, IA. My sister Wendy Boylan is at stage 4 and stage 5 in her legsaccording to the lymphograph. (sp) The insurance company has just deniedher stating it is not medically necessar...
    • July 7, 2015
  • sandra renaud
    sandra renaud wrote a new blog entry:
    truncle le
    Hi I have had truncle le for 8 year The only treatment I have done was compresson and it gave me  more pain after I removed the vest. I am on 30 mgs of slow release morphine and am not getting the same pain managment as when I started My docter will ...
    • June 11, 2015
  • Brenna M.
    Brenna M. wrote a new blog entry:
    LVA is Effective Treatment for Lymphedema
    I recently underwent surgical treatment for primary lymphedema in my right leg. The procedure, called LVA (Lymphaticovenous anastomosis) was performed on April 21, 2015 and I’m already seeing a significant improvement in my swelling!
     
    Some B...
    • May 1, 2015
    • Anna Ensley likes this.
    • Brenna M.
      Anna Ensley Hi Brenna, my son just had the surgery in a children’s hospital and we are told no bed rest and bandaging. I’m curious how bad your...  
    • Brenna M.
      Brenna M. Hi Anna, I'm really glad to hear you son had the surgery. It's most effective the younger the person and the less advanced the stage. I...  
  • Nathalie B
    Nathalie B wrote a new blog entry:
    Alternative to bandages
    Hello!
    I have not posted in a long time, but I think is time I share that kinesio taping has been working very well for me, I was able to learn how to do it by a therapist and now I do it myself. I have not used compression in more than a year now and my...
    • August 5, 2014
  • Jim Miller
    Jim Miller wrote a new blog entry:
    Kidney functions and lymphedema?
    Has anyone found a relationship between primary lymphedema and kidney functions? Or dysfunctions, I should say? I've had primary lymphedema since 1967, it's well managed since 2009 with CDT, MLD, nightime compression, daily Class IV garment wear, and good...
    • July 28, 2014
    • Jim Miller
      Sharon Vogel, CLT Hello, Mr. Miller, I came across your blog question which correlates to another blogger's similar question posed to Dr. Stanley Rockson of LE&RN: https://lymphaticnetwork.org/ask-experts/e/stanley-rockson#496
  • Anne Rock
    Anne Rock wrote a new blog entry:
    A HINT to avoid one cold leg at night.
    I have a solution tor those who have one-leg Lymphedema to keep the normal leg at about the same temperature at night as the one that is wrapped.
    I insert the Lymphedema-side leg of a pair of pajamas (or sweats, Pilates pant...
    • June 13, 2014
  • Julie Deane
    Julie Deane wrote a new blog entry:
    Bandaging question
    I'm a new therapist. When I unwrap my patients bandages there are areas of raised fluid filled skin at the tibia and on the sides where there is space between the foam pieces...is this normal? Can this be avoided?
    • April 28, 2014
  • Kathy Warwick
    Kathy Warwick wrote a new blog entry:
    Armsleeves
    I have Lymphedema in one arm brought on recently by a mastectomy 15 years ago.  I am struggling to find the most effective armsleeve and am currently looking at the Jobst Bella Strong and Jobst Bella Lite. Does anyone have any experiences with one or...
    • April 4, 2014